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· Public charity

CACNA1A Foundation

To find specific treatment options and a cure for CACNA1A patients.

$98k
Granted FY2025still arriving
4
Grants FY2025still arriving
3
States reached
$56k
Largest
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2021 to 2025.

Science & Tech$248kHealth$152kEducation$67k
02FY2025 · 4 grants

Where the money goes

Grants by size, and the largest recipients.

By grant size · FY2025

  • Under $10k1 grant · $7k
  • $10k–50k2 grants · $54k
  • $50k–250k1 grant · $56k
$30,000
Median grant
3
States reached
$1.0M
Total assets
Largest grants
RecipientAmount
Dexorgen Inc$56,360
RNAspire LLC$30,000
CombinedBrain$24,091
ProSci LLC$6,967
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY22–25) land where the poverty rate runs at 13%, against an area that typically sits at 10%. 62% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%The Broad Institute: $50k → 8%Trustees of the University of Penn: $17k → 22%RNAspire LLC: $30k → 11%Columbia University Board of Truste: $75k → 17%University of Iowa: $50k → 15%CombinedBrain: $24k → 4%Dexorgen Inc: $56k → 8%University of Maryland School of Me: $5k → 11%ProSci LLC: $7k → 11%Columbia University Board of Truste: $25k → 17%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

NY
MA
IA
OH
PA
CA
MD
TN
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
Mass General Brigham Incorporated & Affiliates Group Return

Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.

Health
3
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
4
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
5
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
6
University of Chicago Medical Center

Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…

Health
7
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
8
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
9
Hugo W Moser Research Institute At Kennedy Krieger Inc

The hugo w. moser research institute at kennedy krieger, inc. (the "research institute") is an internationally recognized research facility finding answers to problems and injuries that affect a child's developing brain. researchers have…

Science & Tech
10
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
11
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
12
Cedars-Sinai Medical Center

As a leading academic healthcare organization, our mission is to elevate the health status of the communities we serve.(see schedule o for continuation)(continued)-we deliver exceptional healthcare enhanced by research and education-we…

Health
How this is measured
The grantee most central to the portfolio’s shape is University of Chicago; the most unlike its peers is Combinedbrain Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

8 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 8 of the 13 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
8/8
Grantees still filing
8/8
Grew since first funded

Where the money sits, by cause and then by grantee

THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $125,000 · EducationTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CIT…Baylor College of Medicine: $25,000 · EducationBaylor College of MedicineUniversity of Chicago: $25,000 · EducationUniversity of ChicagoTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $16,750 · EducationTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIADexorgen Inc: $56,360 · OtherDexorgen IncState University of Iowa: $50,000 · OtherState University of IowaRNAspire LLC: $30,000 · OtherRNAspire LLCProSci LLC: $6,967 · OtherUNIVERSITY OF MARYLAND COLLEGE PARK: $5,000 · OtherThe Broad Institute Inc: $50,000 · HealthThe Broad Institute IncTHE CLEVELAND CLINIC FOUNDATION GROUP RETURN: $27,500 · HealthTHE CLEVELAND CLINIC FOUNDATIO…Children's Hospital Corporation: $25,000 · HealthChildren's Hospital Corporatio…COMBINEDBRAIN INC: $24,091 · HealthCOMBINEDBRAIN INC
Education$191,750Other$148,327Health$126,591

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%grantee revenue →↑ funder's share of their budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $125,000 over 3y, 0.0% of budgetThe Broad Institute Inc: $50,000 over 1y, 0.0% of budgetTHE CLEVELAND CLINIC FOUNDATION GROUP RETURN: $27,500 over 1y, 0.0% of budgetBaylor College of Medicine: $25,000 over 1y, 0.0% of budgetChildren's Hospital Corporation: $25,000 over 1y, 0.0% of budgetUniversity of Chicago: $25,000 over 1y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $16,750 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization CACNA1A Foundation funds: left to right is the share of its income from government, bottom to top the share from CACNA1A Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%10%20%30%40%share of the org’s income from government →median 19%
  • The Broad Institute Inc: 19% of income from government
  • Children's Hospital Corporation: 10% of income from government
no gov moneyreceives it· size = income
0get no government money at all
2report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–40%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
04Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to CACNA1A Foundation?

Find your warmest path to CACNA1A Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 13 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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