California · Public charity
Association for Creatine Deficiencies
To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS).
- $215k
- Granted FY2024(still arriving)
- 3
- Itemized grants FY2024
- 2
- Organizations funded FY2023
- 50%
- First-time grantees FY2023
- Itemized, FY2024
- $117k
- The rest is grants the schedule does not break out
- Median grant, FY2024
- $30,000
- Largest grant, FY2024
- $72,440
- Organizations funded a year
- 2 to 5
- FY2021 to FY2023
- States reached, FY2024
- 3
- Total assets, FY2024
- $419k
How open it is to new grantees
In FY2023, 50% of the organizations Association for Creatine Deficiencies funded were first-time grantees, receiving 7% of its grant dollars.
New vs renewed · share of each year
In FY2023, 93% of grant dollars renewed an existing relationship; $10k went to new ones.
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2024still arriving | 3 | $117k | 33% |
| FY2023 | 2 | $150k | 50% |
| FY2022 | 3 | $55k | 0% |
| FY2021 | 5 | $109k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2021 to 2024.
Top grantees
Largest recipients by total granted, FY2021 to FY2024, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| University of Utah | $237,440 | 3 | n/a |
| Indiana University Health Inc | $60,000 | 2 | 0% |
| Regents Univ of California | $50,000 | 3 | n/a |
| Children's National Rehabilitation and Specialized Care | $45,000 | 2 | 0% |
| University of Central Florida | $15,000 | 1 | n/a |
| National Organization for Rare Disorders Inc | $14,055 | 1 | 0% |
| Uplifting Athletes Inc | $10,000 | 1 | 1% |
Compare Association for Creatine Deficiencies with peer funders
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About Association for Creatine Deficiencies
- How much does Association for Creatine Deficiencies give?
- Association for Creatine Deficiencies reported 3 itemized grants totaling $117,440, out of $215,440 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 2 and 5 organizations a year over FY2021 to FY2023.
- What does Association for Creatine Deficiencies fund?
- By grant dollars over FY2021 to FY2024, its largest causes are Education (67%), Health (30%), Recreation & Sports (3%).
- Who are Association for Creatine Deficiencies's largest grantees?
- By total granted over FY2021 to FY2024: University of Utah ($237k), Indiana University Health Inc ($60k), Regents Univ of California ($50k).
- Does Association for Creatine Deficiencies fund new organizations?
- In FY2023, 50% of the organizations it funded were first-time grantees.
- Where is Association for Creatine Deficiencies based?
- Association for Creatine Deficiencies is based in CA.
Play a game based on Association for Creatine Deficiencies’ filings →