· Public charity
American Neuromuscular Foundation
The AMERICAN NEUROMUSCULAR FOUNDATION was established to improve the quality of care for people with disorders of skeletal muscle, neuromuscular function, and central and peripheral nervous systems through the promotion of research and education and advancing public understanding of the disorders.
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2020 to 2024.
Where the money goes
Grants by size, and the largest recipients.
How this is measured
By grant size · FY2024
- $10k–50k5 grants · $139k
- $50k–250k2 grants · $100k
| Recipient | Amount |
|---|---|
| UCLA | $50,000 |
| THE BRIGHAM AND WOMEN'S HOSPITAL | $50,000 |
| UNIVERSITY OF FLORIDA | $39,575 |
| GENERAL HOSPITAL CORPORATION | $25,000 |
| THE RESEARCH INSTITUTE OF | $25,000 |
| JOHN HOPKINS UNIVERSITY | $25,000 |
| UNIVERSITY OF INDIANA | $24,907 |
Does the money reach high-need areas?
Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.
Dollar for dollar, its grants (FY20–24) land where the poverty rate runs at 14%, against an area that typically sits at 12%. 72% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.
How this is measured
Which US states its grants reach
How this is measured
Who it funds again
Organizations funded in more than one year, against those funded once.
Grantees it renews have grown median revenue +27% since the first grant, against +11% for those funded once.
7 repeat relationships: 2 still active in FY2024, 5 since wound down; 5 grantees were first funded in FY2024 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2024, 31% of grant dollars renewed an existing relationship; $164k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
Backed again, and grew
DUKE UNIVERSITY4× · 2020–2023 · $133k · revenue +49%- RIRehabilitation Institute of Chicago4× · 2020–2023 · $130k · revenue +27%
WASHINGTON UNIVERSITY3× · 2020–2022 · $113k · revenue +16%
Funded once
- VHVCUVCU HEALTH CAMPUSone grant, 2020 · $14k
- MGMASSACHUSETTS GENERAL HOSPITALone grant, 2020 · $13k
- NYNew York Universityone grant, 2023 · $13k · revenue +11%
How this is measured
Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.
7 grantees tracked through their own filings, 2017–2025.
Each grant beside the grantee’s revenue from every source, year by year.
How this is measured
Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 7 of the 16 grantees resolved in that span have returns of their own we could reconcile.
Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.
Where the money sits, by cause and then by grantee
Each grantee by its size and the funder’s share of it; top left is load-bearing
Grantee by grantee: a decade per organization, before and after funding
A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.
How much its grantees rely on government
Each dot is one organization American Neuromuscular Foundation funds: left to right is the share of its income from government, bottom to top the share from American Neuromuscular Foundation. Bigger dots raise more.
- Johns Hopkins University: 12% of income from government
How this is measured
Play a game based on American Neuromuscular’s filings →