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Acmg Foundation for Genetic and Genomic Medicine

Support the american college of medical genetics and genomics' (acmg) educational mission to "translate genes into health" by raising funds to attract the next generation of medical geneticists and genetic counselors, to sponsor important research and to promote information about medical genetics.

$251k
Granted FY2024still arriving
8
Grants FY2024still arriving
8
States reached
$65k
Largest
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$2.5MEducation$731kReligion$132k
02FY2024 · 8 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 8 grants below total $202,500, the rows itemized in this filing. The $250,500 headline is the total grant expense on the return; the other $48,000 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2024

  • $10k–50k7 grants · $138k
  • $50k–250k1 grant · $65k
$16,250
Median grant
8
States reached
$3.5M
Total assets
Largest grants
RecipientAmount
GREENWOOD GENETIC CENTER FOUNDATION$65,000
MASSACHUSETTS EYE & EAR INFIRMARY$37,500
UNIVERSITY OF COLORADO$18,750
OREGON HEALTH & SCIENCE UNIVERSITY$16,250
JOHNS HOPKINS UNIVERSITY$16,250
UPMC CHILDREN'S HOSPITAL OF PITTSBURGH$16,250
BAYLOR COLLEGE OF MEDICINE$16,250
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL$16,250
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–24) land where the poverty rate runs at 15%, against an area that typically sits at 11%. 84% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%MASSACHUSETTS EYE & EAR INFIRMARY: $38k → 8%CHILDREN'S HOSPITAL CORPORATION: $218k → 16%UNIVERSITY HEALTH CENTER OF PITTSBURG: $75k → 11%CHILDREN'S HOSPITAL OF PHILADELPHIA: $56k → 22%STANFORD UNIVERSITY: $43k → 7%BAYLOR COLLEGE OF MEDICINE: $150k → 16%GREENWOOD GENETIC CENTER FOUNDATION: $65k → 18%CHILDREN'S RESEARCH INSTITUTE: $150k → 14%DETROIT EDUCATION & RESEARCH: $150k → 21%OREGON HEALTH & SCIENCE UNIVERSITY: $16k → 12%DUKE UNIVERSITY: $75k → 11%UNIVERSITY OF NORTH CAROLINA: $38k → 13%EMORY UNIVERSITY: $75k → 14%UNIVERSITY OF COLORADO: $19k → 12%THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL: $16k → 15%UNIVERSITY OF WASHINGTON OF SEATTLE: $75k → 9%AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS: $64k → 8%CHILDREN'S HOSPITAL CORPORATION: $151k → 16%UPMC CHILDREN'S HOSPITAL OF PITTSBURGH: $16k → 11%CHILDREN'S HOSPITAL OF PHILADELPHIA: $38k → 22%STANFORD UNIVERSITY: $43k → 7%THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER: $75k → 16%GRENWOOD GENETIC CENTER FOUNDATION: $33k → 18%CHILDREN'S RESEARCH INSTITUTE: $75k → 14%OREGON HEALTH & SCIENCE UNIVERSITY: $16k → 12%DUKE UNIVERSITY: $75k → 11%EMORY: $38k → 14%UNIVERSITY OF WASHINGTON OF SEATTLE: $75k → 9%AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS: $22k → 8%CHILDREN'S HOSPITAL CORPORATION: $150k → 16%THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER: $75k → 16%GRENWOOD GENETIC CENTER FOUNDATION: $33k → 18%SEATTLE CHILDREN'S HOSPITAL: $75k → 9%CHILDREN'S HOSPITAL CORPORATION: $80k → 16%BAYLOR COLLEGE OF MEDICINE: $75k → 16%CHILDREN'S HOSPITAL CORPORATION: $38k → 16%BAYLOR COLLEGE OF MEDICINE: $75k → 16%BAYLOR COLLEGE OF MEDICINE: $68k → 16%BAYLOR COLLEGE OF MEDICINE: $16k → 16%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

WA
IL
MI
MA
OR
OH
PA
CA
CO
MD
NC
SC
DC
AL
GA
TX
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

88%of every dollar goes to organizations it has funded before.
$2.9M · 16 repeat orgs$389k to everyone else

Grantees it renews have grown median revenue +64% since the first grant, against +45% for those funded once.

16 repeat relationships: 4 still active in FY2024, 12 since wound down; 4 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

16
3

Total granted

$2.9M
$300k

Median revenue growth · since first grant

+64%
+45%

Still filing today

69%
67%

New vs renewed · share of each year

In FY2024, 56% of grant dollars renewed an existing relationship; $89k went to new ones.

50%100%’17’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24
HealthEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • CH
    Children's Hospital Corporation
    5× · 2019–2023 · $637k · revenue +75%
  • BC
    Baylor College of Medicine
    5× · 2017–2024 · $384k · revenue +67%
  • CR
    CHILDREN'S RESEARCH INSTITUTE
    2× · 2017–2018 · $225k · revenue +90%

Funded once

  • DE
    DETROIT EDUCATION & RESEARCH
    one grant, 2017 · $150k · revenue +2%
  • SC
    Seattle Children's Foundationgraduated
    one grant, 2019 · $75k · revenue +45%
  • U
    UPMC
    one grant, 2017 · $75k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
3
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
4
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
5
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
6
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
7
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
8
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
9
Mass General Brigham Incorporated & Affiliates Group Return

Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.

Health
10
Cedars-Sinai Medical Center

As a leading academic healthcare organization, our mission is to elevate the health status of the communities we serve.(see schedule o for continuation)(continued)-we deliver exceptional healthcare enhanced by research and education-we…

Health
11
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
12
Massachusetts Eye and Ear Associates Inc

MASSACHUSETTS EYE AND EAR ASSOCIATES, INC. ("MEEA") IS A SPECIALTY PHYSICIAN GROUP PRACTICE. IT PROVIDES CARE FOR PATIENTS OF THE MASSACHUSETTS EYE AND EAR INFIRMARY, INC. ("MEEI"), A RELATED ORGANIZATION. THE PRACTICE SPECIALIZES IN…

Health
How this is measured
The grantee most central to the portfolio’s shape is Baylor College of Medicine; the most unlike its peers is University of Miami. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

15 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 15 of the 24 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
14/15
Grantees still filing
14/15
Grew since first funded

Where the money sits, by cause and then by grantee

Children's Hospital Corporation: $636,885 · HealthChildren's Hospital CorporationCHILDREN'S RESEARCH INSTITUTE: $225,000 · HealthCHILDREN'S RESEARCH INSTITUTEDETROIT EDUCATION & RESEARCH: $150,000 · HealthDETROIT EDUCATION & RESEARCHGREENWOOD GENETIC CENTER INC: $130,000 · HealthGREENWOOD GENETIC CENTER INCTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $93,750 · HealthTHE CHILDREN'S HOSPITAL OF PHILADELPHIA+1 more: $37,500 · HealthUNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL: $187,500 · OtherUNIVERSITY OF NORTH CAROLINA AT CHA…UNIVERSITY OF ALABAMA AT BIRMINGHAM: $184,304 · OtherUNIVERSITY OF ALABAMA AT BIRMINGHAMUNIVERSITY OF WASHINGTON: $150,000 · OtherUNIVERSITY OF WASHINGTONUNIVERSITY OF TEXAS HEALTH SCIENCE CENTER HOUSTON: $150,000 · OtherUNIVERSITY OF TEXAS HEALTH SCIENCE …REGENTS OF THE UNIVERSITY OF CALIFORNIA: $91,250 · OtherREGENTS OF THE UNIVERSITY OF CALIFO…AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS: $85,447 · OtherAMERICAN COLLEGE OF MEDICAL GENETIC…Seattle Children's Foundation: $75,000 · OtherSeattle Children's FoundationUPMC: $75,000 · OtherUPMC+3 more: $51,250 · OtherBaylor College of Medicine: $383,750 · EducationBaylor College of MedicineDUKE UNIVERSITY: $150,000 · EducationDUKE UNIVERSITYUniversity of Miami: $150,000 · EducationUniversity of MiamiEmory University: $112,500 · EducationEmory UniversityJOHNS HOPKINS UNIVERSITY: $110,000 · EducationJOHNS HOPKINS UNIVERSITYTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $85,000 · EducationTHE BOARD OF TRUSTEES OF THE LELAN…+1 more: $32,500 · Education
Health$1,273,135Other$1,049,751Education$1,023,750

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$100Mgrantee revenue →↑ funder's share of their budgetChildren's Hospital Corporation: $636,885 over 5y, 0.0% of budgetBaylor College of Medicine: $383,750 over 5y, 0.0% of budgetCHILDREN'S RESEARCH INSTITUTE: $225,000 over 2y, 0.2% of budgetDUKE UNIVERSITY: $150,000 over 2y, 0.0% of budgetUniversity of Miami: $150,000 over 2y, 0.0% of budgetGREENWOOD GENETIC CENTER INC: $130,000 over 3y, 0.2% of budgetEmory University: $112,500 over 2y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $110,000 over 3y, 0.0% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $93,750 over 2y, 0.0% of budgetAMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS: $85,447 over 2y, 0.7% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $85,000 over 2y, 0.0% of budgetSeattle Children's Foundation: $75,000 over 1y, 0.1% of budgetOREGON HEALTH & SCIENCE UNIVERSITY FOUNDATION: $32,500 over 2y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a set of overlaps that mostly run through this funder rather than between each other.

Donor Advised Charitable Giving IncCA5.1× affinity4 shared granteesties to 0 of 0Hover any node to trace its alignments.Compare side by side →

Open a dossier: Donor Advised Charitable Giving Inc

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Acmg Foundation for Genetic and Genomic Medicine funds: left to right is the share of its income from government, bottom to top the share from Acmg Foundation for Genetic and Genomic Medicine. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%23%45%68%90%share of the org’s income from government →median 10%
  • Johns Hopkins University: 12% of income from government
  • Children's Hospital Corporation: 10% of income from government
  • University of Miami: 5% of income from government
  • Oregon Health & Science University Foundation: 1% of income from government
no gov moneyreceives it· size = income
0get no government money at all
1report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–90%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 24 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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