Nonprofit screen
Screen a listThe Association for Frontotemporal Degeneration
Can you give?
Listed with the IRS. Every screen came back clear.
A 501(c)(3) on Publication 78 and the IRS master file.
- IRS nonprofit listing
- No issue
- Revocation
- None
- IRS files
- Agree
- Sanctions
- No match
- IRS bulletin
- No notice
- California
- Registered
- Charity type
- 509(a)(1)
$14Mrevenue
FY2025 · +20% in 3 yrs64staff
8 of 8years filed
’18’19’20’21’22’23’24’25
Revenue and spendingRevenueSpendingDeficit
Against similar nonprofits FY2025
Operating margin19.8%
Months of reserve2.3mo
Revenue growth (annualized)+16.2%
Middle half of peersMedianAssociation for Frontotemporal Degeneration
Where the money goes FY2025 · $12M spent
Programs$9.5M82%Management and general$465k4%Fundraising$1.6M14%990 FY2025 · Part IX line 25
Nothing to check in the filings
In its favor2
Strong governance
21 of 21 board members independent. Conflict-of-interest and whistleblower policies, audited financial statements, board reviews the 990.
990 Part VIGrowing faster than peers
Revenue up 16% a year since FY2017, in the top quarter of similar nonprofits.
990 Part I · peer cohort193funders
$4.6Ma year, last 3 years
28%from its largest funder
Funder’17’18’19’20’21’22’23The David Geffen FoundationSince FY2018$1.0M$1.0M$1.0M$1.0M$1.0M$1.0MSamuel I Newhouse Foundation IncOn and off$1.4M$2.5MGeorge L Ohrstrom FoundationSince FY2019$100k$100k$175k$225k$106kAmyotrophic Lateral Sclerosis AssnNew in FY2023$530kWilliam Randolph Hearst FoundationNew in FY2023$225kGanzi Family Foundation Uad 12192009On and off$50k$50k$50kDonor-advised giftsDonors not disclosed$330k$293k$446k$439k$210k$1.8M$2.6M121 other fundersUp to $75k a year each$117k$139k$147k$356k$313k$264k$346k
FundedThrough a donor-advised fund