Tennessee · Nonprofit
TARLOV CYST DISEASE FOUNDATION
TARLOV CYST DISEASE FOUNDATION (Tennessee) receives grants from 1 organization whose IRS filings report $72,000 to it, the largest being SHARANAM FOUNDATION ($72,000). 1 of them have funded it in more than one year.
- Revenue FY2024
- $48k
- Funders on record
- 1
- Grants received
- $72k
- Net assets
- $2.9M
What Tarlov Cyst Disease Foundation does
Mission
The Tarlov Cyst Disease Foundation is a volunteer-based, 501(c)(3) non-profit foundation dedicated to the research, improved diagnosis and development of successful treatments and outcomes for symptomatic Tarlov cysts. The Foundation is incorporated exclusively for scientific, educational, and charitable purposes that will seek to improve the level of understanding, diagnosis and treatment of Tarlov cysts.
As stated on its FY2024 Form 990.
Program
The Tarlov Cyst Disease Foundation is a volunteer-based, 501(c)(3) non-profit foundation dedicated to the research, improved diagnosis and development of successful treatments and outcomes for symptomatic Tarlov cysts.
$19,407 spent100% of program spending
The program described on its FY2025 Form 990. Program spending in total: $19,407.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $140k to $2.9M (+1976%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
5% of TARLOV CYST DISEASE FOUNDATION’s revenue is contributions — more earned-revenue than three-quarters of its peers (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Andrew Tompsett
INTERIM ExecDir
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base held at 1 funder, grant income rose $10k → $12k.
From the IRS filings of TARLOV CYST DISEASE FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
TARLOV CYST DISEASE FOUNDATION draws 100% of its grant income from funders outside Tennessee, across 1 state in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
TARLOV CYST DISEASE FOUNDATION holds deeper cash reserves than three-quarters of the 9,898 health nonprofits its size.
this organization peer median middle 50% of peers· 9,898 health nonprofits under $100k, FY2024
Organizations like TARLOV CYST DISEASE FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Tennessee
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
76% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for TARLOV CYST DISEASE FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds TARLOV CYST DISEASE FOUNDATION?
- TARLOV CYST DISEASE FOUNDATION (Tennessee) receives grants from 1 organization whose IRS filings report $72,000 to it, the largest being SHARANAM FOUNDATION ($72,000). 1 of them have funded it in more than one year.
- How many funders does TARLOV CYST DISEASE FOUNDATION have?
- IRS filings report 1 organization giving $72,000 in grants to TARLOV CYST DISEASE FOUNDATION, 1 of which have funded it in more than one year.
- Who is the largest funder of TARLOV CYST DISEASE FOUNDATION?
- SHARANAM FOUNDATION is the largest funder on record, with $72,000 in grants. The full list of funders is on this page.
- How can an organization like TARLOV CYST DISEASE FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Tennessee. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Tarlov Cyst Disease →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 1 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing