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Shwachman-Diamond Syndrome Alliance Inc

EIN 84-4654297Woburn, MAHealthLatest 990 FY2024

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Listed with the IRS. Every screen came back clear.

A 501(c)(3) on Publication 78 and the IRS master file.

A paid feature, included from the $75 plan up. Sign in to download.Checked Oct 15, 2026, 9:46 PM ET
IRS listing
Listed
Revocation
None
IRS files
Agree
Sanctions
No match
IRS bulletin
No notice
California
Registered
Charity type
509(a)(2)

$133krevenue
FY2024 · −66% in 3 yrs
1staff
4 of 4years filed
’21’22’23’24
Revenue and spendingRevenueSpendingDeficit
$0$100k$200k$300k$400k’21’22’23’24
Against similar nonprofits FY2024
Operating margin−167.5%
Months of reserve19.3mo
Revenue growth (annualized)−29.9%
Middle half of peersMedianShwachman-Diamond Syndrome Alliance
Where the money goes FY2024 · $357k spent
Programs$296k83%Management and general$34k9%Fundraising$27k8%990 FY2024 · Part IX line 25