Nonprofit screen
Screen a listNational Foundation for Ectodermal Dysplasias
Can you give?
Listed with the IRS. Every screen came back clear.
A 501(c)(3) on Publication 78 and the IRS master file.
- IRS nonprofit listing
- No issue
- Revocation
- None
- IRS files
- Agree
- Sanctions
- No match
- IRS bulletin
- No notice
- California
- Registered
- Charity type
- 509(a)(1)
$1.6Mrevenue
FY2025 · +10% in 3 yrs10staff
8 of 8years filed
’18’19’20’21’22’23’24’25
Revenue and spendingRevenueSpending
Against similar nonprofits FY2025
Operating margin5.3%
Months of reserve9.5mo
Revenue growth (annualized)+8.3%
Middle half of peersMedianNational Foundation for Ectodermal Dysplasias
Where the money goes FY2025 · $1.6M spent
Programs$1.3M85%Management and general$21k1%Fundraising$220k14%990 FY2025 · Part IX line 25
Nothing to check in the filings
In its favor3
Strong governance
11 of 11 board members independent. Conflict-of-interest and whistleblower policies, audited financial statements, board reviews the 990.
990 Part VIGrowing faster than peers
Revenue up 8% a year since FY2017, faster than half of similar nonprofits.
990 Part I · peer cohortFunders stay
12 of the 17 funders that gave before FY2021 are still giving.
Funders’ 990-PF grant lists39funders
$262ka year, last 3 years
25%from its largest funder
Funder’17’18’19’20’21’22’23Incontinentia Pigmenti International FoundationStopped after FY2022$10k$80k$40k$103k–Kate Cassidy FoundationSince FY2019$15k$15k$15k$15k$15kMoss Family FoundationStopped after FY2021$14k$18k$12k$6k$11k–The McGowan Family FoundationSince FY2020$10k$15k$15k$15kDelta Theta Tau Sorority IncEvery year since FY2017$5k$5k$6k$10k$5k$12k$11kThe Hubbard Broadcasting FoundationOn and off$25k$25kDonor-advised giftsDonors not disclosed$10k$5k$11k$47k$148k$111k$129k20 other fundersUp to $25k a year each$18k$2k$13k$4k$18k$14k$43k
FundedThrough a donor-advised fundStopped