Nonprofit screen
Screen a listHuntington's Disease Society of America Inc
Can you give?
Listed with the IRS. Every screen came back clear.
A 501(c)(3) on Publication 78 and the IRS master file.
- IRS listing
- Listed
- Revocation
- None
- IRS files
- Agree
- Sanctions
- No match
- IRS bulletin
- No notice
- California
- Registered
- Charity type
- 509(a)(1)
$11Mrevenue
FY2025 · +5% in 3 yrs38staff
8 of 8years filed
’18’19’20’21’22’23’24’25
Revenue and spendingRevenueSpendingDeficit
Where the money goes FY2025 · $9.4M spent
Programs$7.4M78%Management and general$786k8%Fundraising$1.3M13%990 FY2025 · Part IX line 25
Worth checking1
Deficits in 2 of the last 3 years
−$1.3M in FY2023 and −$1.2M in FY2024. Cash covers 8.1 months.
990 Part I and balance sheetIn its favor1
Strong governance
14 of 14 board members independent. Conflict-of-interest and whistleblower policies, audited financial statements, board reviews the 990.
990 Part VI148funders
$1.5Ma year, last 3 years
23%from its largest funder
Funder’17’18’19’20’21’22’23The Griffin Foundation IncStopped after FY2021$200k$211k$198k$292k$48k–The William & Margaret Fern Holmes Family FoundationSince FY2018$175k$175k$150k$150k$25k$25kMichael Berman Family FoundationStopped after FY2021$104k$50k$201k$119k$100k–Lohengrin Foundation IncStopped after FY2022$240k$287k–Chc Creating Healthier CommunitiesOn and off$112k$78k$45k$32k$28k$30kCHDI Foundation Inc Attn Ken Slutsky Tax Exempt Inst GrpSince FY2021$155k$75k$90kDonor-advised giftsDonors not disclosed$285k$403k$334k$923k$1.0M$1.1M$485k89 other fundersUp to $250k a year each$199k$232k$378k$332k$271k$117k$105k
FundedThrough a donor-advised fundStopped