Nonprofit screen
Screen a listEhlers-Danlos Society
Can you give?
Listed with the IRS. Every screen came back clear.
A 501(c)(3) on Publication 78 and the IRS master file.
- IRS nonprofit listing
- No issue
- Revocation
- None
- IRS files
- Agree
- Sanctions
- No match
- IRS bulletin
- No notice
- California
- Registered
- Charity type
- 509(a)(1)
$9.6Mrevenue
FY2025 · +113% in 3 yrs15staff
7 of 8years filed
’18’19’20’21’22’23’24’25
Revenue and spendingRevenueSpendingDeficit
Against similar nonprofits FY2025
Operating margin1.7%
Months of reserve6.8mo
Revenue growth (annualized)+33.5%
Middle half of peersMedianEhlers-Danlos Society
Where the money goes FY2025 · $9.4M spent
Programs$8.7M92%Management and general$464k5%Fundraising$259k3%990 FY2025 · Part IX line 25
Nothing to check in the filings
In its favor2
Strong governance
12 of 12 board members independent. Conflict-of-interest and whistleblower policies, audited financial statements, board reviews the 990.
990 Part VIGrowing faster than peers
Revenue up 33% a year since FY2017, in the top quarter of similar nonprofits.
990 Part I · peer cohort66funders
$993ka year, last 3 years
47%from its largest funder
Funder’17’18’19’20’21’22’23Mike & Sofia Segal FoundationNew in FY2023$1.4MMicky and Madeleine Arison Family Foundation C/O Richard Kohan Afo LLCOn and off$1.0MHugh and Charlotte Maclellan Charitable Charitable TrustSince FY2022$15k$75kThe David and Kathleen M Wojcik Foundation IncOn and off$5k$5k$5k$5k$5kThe Ott Family Foundation Fka as Ott Charitable FoundationOn and off$6k$5k$10kChristian Family FoundationSince FY2020$4k$5k$6k$5kDonor-advised giftsDonors not disclosed$312k$232k$183k$220k$521k$376k$454k31 other fundersUp to $13k a year each$2k$170$3k$692$34k$23k$37k
FundedThrough a donor-advised fund