Massachusetts · Public charity
Usher Syndrome Society Inc
To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure.
- $767k
- Granted FY2025(still arriving)
- 3
- Itemized grants FY2025
- 3
- Organizations funded FY2024
- 33%
- First-time grantees FY2024
- Itemized, FY2025
- $615k
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $100,000
- Largest grant, FY2025
- $500,000
- Organizations funded a year
- 2 to 4
- FY2019 to FY2024
- States reached, FY2025
- 2
- Total assets, FY2025
- $2.3M
How open it is to new grantees
In FY2024, 33% of the organizations Usher Syndrome Society Inc funded were first-time grantees, receiving 55% of its grant dollars.
New vs renewed · share of each year
In FY2024, 45% of grant dollars renewed an existing relationship; $145k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 3 | $615k | 33% |
| FY2024 | 3 | $265k | 33% |
| FY2023 | 3 | $284k | 0% |
| FY2022 | 2 | $225k | 50% |
| FY2021 | 2 | $40k | 0% |
| FY2020 | 4 | $100k | 50% |
| FY2019 | 4 | $100k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2019 to 2025.
Top grantees
Largest recipients by total granted, FY2019 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Children's Hospital Corporation | $645,000 | 2 | 0% |
| University of Oregon | $100,000 | 1 | n/a |
| Coalition for Usher Syndrome Research | $85,000 | 6 | 8% |
Plus 6 recipients with no EIN on record ($799k), not named here.
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About Usher Syndrome Society Inc
- How much does Usher Syndrome Society Inc give?
- Usher Syndrome Society Inc reported 3 itemized grants totaling $615,000, out of $767,343 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 2 and 4 organizations a year over FY2019 to FY2024.
- What does Usher Syndrome Society Inc fund?
- By grant dollars over FY2019 to FY2025, its largest causes are Health (99%), Science & Tech (1%).
- Who are Usher Syndrome Society Inc's largest grantees?
- By total granted over FY2019 to FY2025: Children's Hospital Corporation ($645k), University of Oregon ($100k), Coalition for Usher Syndrome Research ($85k).
- Does Usher Syndrome Society Inc fund new organizations?
- In FY2024, 33% of the organizations it funded were first-time grantees.
- Where is Usher Syndrome Society Inc based?
- Usher Syndrome Society Inc is based in MA.
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