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· Public charity

Treatments for Epilepsy and Symptoms of

Tess Research Foundations goal is to find better treatment options for SLC13A5 deficiency, (Continued on Sch O)

$174k
Granted FY2024still arriving
2
Grants FY2024still arriving
2
States reached
$80k
Largest

Read this first · the figures below need context

73% of Treatments for Epilepsy and Symptoms of’s FY2024 grant dollars went to The Board Of Trustees Of The Leland Stanford Junior University, not to grantees.

Its money now reaches organizations through that sponsor, which does not report who recommended each grant. FY2024 names 1 organization directly, so a portfolio cannot be read from it.

Organizations named directly on the return

3
’17
1
’18
4
’19
1
’20
1
’21
5
’22
1
’23
1
’24

Amber years are those where most dollars went to a sponsor.

01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$801kEducation$356kScience & Tech$149k
02FY2024 · 2 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 2 grants below total $110,179, the rows itemized in this filing. The $174,093 headline is the total grant expense on the return; the other $63,914 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2024

  • $10k–50k1 grant · $30k
  • $50k–250k1 grant · $80k
$80,200
Median grant
2
States reached
$407k
Total assets
Largest grants
RecipientAmount
Stanford University$80,200
CURE Epilepsy$29,979
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–24) land where the poverty rate runs at 12%, against an area that typically sits at 9%. 68% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 9%Uplifting Athletes: $10k → 6%Stanford University: $140k → 8%UC Regents: $100k → 10%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA: $100k → 11%CIITIZEN CORPORATION: $8k → 15%New York University School of Medic: $119k → 17%UT SOUTHWESTERN MEDICAL CENTER: $151k → 14%UNIVERSITY OF NORTH CAROLINA HUMAN PLURIPOTENT STEM CELL CORE: $31k → 13%BROWN UNIVERSITY: $75k → 14%CURE Epilepsy: $30k → 14%The Jackson Laboratory: $13k → 11%Stanford University: $136k → 8%NEW YORK UNIVERSITY SCHOOL OF MEDICINE: $50k → 17%UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER: $100k → 14%Stanford University: $80k → 8%Icahn School of Medicine at Mount S: $50k → 17%Stanford University: $14k → 8%Laxai Avanti Life Sciences Inc: $15k → 8%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

ME
IL
NY
PA
RI
CA
MO
NC
GA
TX

Grants abroad, by region: $60k on the FY2024 return

Schedule F, as filed: 1 region. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$60k · 100% · 2 grants

Stated purpose: Research

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
04

Where the work is directed

The same grants placed two ways: where each recipient sits, and where its stated purpose sends the money.

About 36% of Treatments for Epilepsy and Symptoms of’s grant dollars are earmarked for a different county than the recipient’s own address.

Treatments for Epilepsy and Symptoms oflessmore of its giving
Placed by recipient address · 3.1% directed abroad (not shown)
How this is measured
Recipient view: each grant at its grantee’s ZIP, mapped to a county. Directed view: each grant at the county its stated purpose names, falling back to the recipient’s county when the purpose names no place; US grants only. A county shows only if it carries the top 95% of that view’s dollars. Purposes are read from the funder’s own 990 grant descriptions.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

77%of every dollar goes to organizations it has funded before.
$665k · 4 repeat orgs$196k to everyone else

4 repeat relationships: 0 still active in FY2024, 4 since wound down; 1 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

4
8

Total granted

$665k
$166k

Still filing today

0%
50%

New vs renewed · share of each year

In FY2024, 0% of grant dollars renewed an existing relationship; $30k went to new ones.

50%100%’17’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24
HealthPhilanthropyEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • TU
    THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE
    2× · 2018–2019 · $251k
  • RO
    REGENTS OF THE UNIVERSITY OF CALIFORNIA
    2× · 2017–2022 · $200k
  • NY
    NEW YORK UNIVERSITY SCHOOL OF MEDICINE
    2× · 2019–2021 · $169k

Funded once

  • ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
    one grant, 2022 · $50k · revenue +19%
  • AF
    American Friends of the University of Calgary Inc
    one grant, 2017 · $40k · revenue -60%
  • OH
    Oregon Health & Science University
    one grant, 2022 · $25k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field
05the grantee network

7 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 7 of the 15 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
7/7
Grantees still filing
5/7
Grew since first funded

Where the money sits, by cause and then by grantee

THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE: $250,910 · OtherTHE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTEREGENTS OF THE UNIVERSITY OF CALIFORNIA: $200,000 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIANEW YORK UNIVERSITY SCHOOL OF MEDICINE: $168,975 · OtherNEW YORK UNIVERSITY SCHOOL OF MEDICINEUNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL: $45,515 · OtherUNIVERSITY OF NORTH CAROLINA AT CHAPEL HILLOregon Health & Science University: $25,000 · Other+3 more: $28,067 · OtherTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $370,109 · EducationTHE BOARD OF TRUSTEES OF THE LELAND …ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $50,000 · EducationICAHN SCHOOL OF MEDICINE AT MOUNT SI…BROWN UNIVERSITY: $75,000 · Community ImprovementCitizens United for Research in Epilepsy: $29,979 · HealthTHE JACKSON LABORATORY: $12,677 · HealthUPLIFTING ATHLETES INC: $10,000 · HealthAmerican Friends of the University of Calgary Inc: $40,000 · Philanthropy
Other$718,467Education$420,109Community Improvement$75,000Health$52,656Philanthropy$40,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $370,109 over 4y, 0.0% of budgetBROWN UNIVERSITY: $75,000 over 1y, 0.0% of budgetICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $50,000 over 1y, 0.0% of budgetAmerican Friends of the University of Calgary Inc: $40,000 over 1y, 24% of budgetCitizens United for Research in Epilepsy: $29,979 over 1y, 0.5% of budgetTHE JACKSON LABORATORY: $12,677 over 1y, 0.0% of budgetUPLIFTING ATHLETES INC: $10,000 over 1y, 0.9% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization Treatments for Epilepsy and Symptoms of funds: left to right is the share of its income from government, bottom to top the share from Treatments for Epilepsy and Symptoms of. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%5%10%15%20%share of the org’s income from government →
    no gov moneyreceives it· size = income
    0get no government money at all
    2report government grants on their 990 we could not trace to a source (not plotted)
    0rely on government for over half their income
    ⤢ axis zoomed · 0–20%
    typical government reliance, FY20–25
    How this is measured
    Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
    05Through Plinth

    Warm introductions · Powered by PlinthPlus

    How do I get to Treatments for Epilepsy and Symptoms of?

    Find your warmest path to Treatments for Epilepsy and Symptoms of through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

    Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

    On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 15 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

    How this is measured
    Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

    Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

    Source object · view filing

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