· Public charity
Treatments for Epilepsy and Symptoms of
Tess Research Foundations goal is to find better treatment options for SLC13A5 deficiency, (Continued on Sch O)
Read this first · the figures below need context
73% of Treatments for Epilepsy and Symptoms of’s FY2024 grant dollars went to The Board Of Trustees Of The Leland Stanford Junior University, not to grantees.
Its money now reaches organizations through that sponsor, which does not report who recommended each grant. FY2024 names 1 organization directly, so a portfolio cannot be read from it.
Organizations named directly on the return
Amber years are those where most dollars went to a sponsor.
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Where the money goes
Grants by size, and the largest recipients.
How this is measured
By grant size · FY2024
- $10k–50k1 grant · $30k
- $50k–250k1 grant · $80k
| Recipient | Amount |
|---|---|
| Stanford University | $80,200 |
| CURE Epilepsy | $29,979 |
Does the money reach high-need areas?
Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.
Dollar for dollar, its grants (FY17–24) land where the poverty rate runs at 12%, against an area that typically sits at 9%. 68% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.
How this is measured
Which US states its grants reach
Grants abroad, by region: $60k on the FY2024 return
Schedule F, as filed: 1 region. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: Research
How this is measured
Where the work is directed
The same grants placed two ways: where each recipient sits, and where its stated purpose sends the money.
About 36% of Treatments for Epilepsy and Symptoms of’s grant dollars are earmarked for a different county than the recipient’s own address.
How this is measured
Who it funds again
Organizations funded in more than one year, against those funded once.
4 repeat relationships: 0 still active in FY2024, 4 since wound down; 1 grantees were first funded in FY2024 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Still filing today
New vs renewed · share of each year
In FY2024, 0% of grant dollars renewed an existing relationship; $30k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
Backed again, and grew
- TUTHE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE2× · 2018–2019 · $251k
- ROREGENTS OF THE UNIVERSITY OF CALIFORNIA2× · 2017–2022 · $200k
- NYNEW YORK UNIVERSITY SCHOOL OF MEDICINE2× · 2019–2021 · $169k
Funded once
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAIone grant, 2022 · $50k · revenue +19%- AFAmerican Friends of the University of Calgary Incone grant, 2017 · $40k · revenue -60%
- OHOregon Health & Science Universityone grant, 2022 · $25k
How this is measured
Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.
7 grantees tracked through their own filings, 2017–2025.
Each grant beside the grantee’s revenue from every source, year by year.
How this is measured
Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 7 of the 15 grantees resolved in that span have returns of their own we could reconcile.
Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.
Where the money sits, by cause and then by grantee
Each grantee by its size and the funder’s share of it; top left is load-bearing
Grantee by grantee: a decade per organization, before and after funding
A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.
- Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
- Who funds BROWN UNIVERSITY ↗
- Who funds ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ↗
- Who funds American Friends of the University of Calgary Inc ↗
- Who funds Citizens United for Research in Epilepsy ↗
- Who funds THE JACKSON LABORATORY ↗
- Who funds UPLIFTING ATHLETES INC ↗
How much its grantees rely on government
Each dot is one organization Treatments for Epilepsy and Symptoms of funds: left to right is the share of its income from government, bottom to top the share from Treatments for Epilepsy and Symptoms of. Bigger dots raise more.
How this is measured
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Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
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