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Connecticut · Public charity

The Orphan Disease Pathway Project

The organization is working towards helping find cures and/or effective treatments for orphan (rare) diseases, and to facilitate research of such diseases.

$2.1M
Granted FY2022
1
Grants FY2022
Read the full brief

Read this first · the figures below need context

100% of The Orphan Disease Pathway Project’s FY2022 grant dollars went to Trustees Of The University Of Pennsylvania, not to grantees.

Its money now reaches organizations through that sponsor, which does not report who recommended each grant. FY2022 names 0 organizations directly, so a portfolio cannot be read from it.

Organizations named directly on the return

0
’18
0
’20
0
’22

Amber years are those where most dollars went to a sponsor.

Median grant, FY2022
$2,150,000
Largest grant, FY2022
$2,150,000
States reached, FY2022
1
Total assets, FY2022
$1.3M
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2018 to 2022.

Health$6.3M

Top grantees

Largest grants in FY2022.

UNIVERSITY OF PENNSYLVANIA$2,150,000

Compare The Orphan Disease Pathway Project with peer funders

Warm introductions · Powered by PlinthPlus

How do I get to The Orphan Disease Pathway Project?

Find your warmest path to The Orphan Disease Pathway Project through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

About The Orphan Disease Pathway Project

How much does The Orphan Disease Pathway Project give?
The Orphan Disease Pathway Project reported 1 grants totaling $2,150,000 in its FY2022 IRS filing.
What does The Orphan Disease Pathway Project fund?
By grant dollars, its largest causes are Health (100%).
Where is The Orphan Disease Pathway Project based?
The Orphan Disease Pathway Project is based in CT.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 1 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2022, released 2022. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Possibly out of date. A more recent filing (FY2024) is on record and reports no grant expense, so the figures above are from FY2022, the most recent year this funder made grants.

Source object · view filing

Play a game based on Orphan Disease Pathway Project’s filings →

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