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Washington, D.C. · Public charity

The National Fragile X Foundation

THE NATIONAL FRAGILE X FOUNDATION serves the entire fragile x community to live their best lives by providing the knowledge, resources, and tools until, and even after, more effective treatments and a cure are achieved.

$161k
Granted FY2024(still arriving)
4
Itemized grants FY2024
4
Organizations funded FY2023
0%
First-time grantees FY2023
Read the full brief
Itemized, FY2024
$114k
The rest is grants the schedule does not break out
Median grant, FY2024
$34,286
Largest grant, FY2024
$49,830
Organizations funded a year
4 to 4
FY2022 to FY2023
States reached, FY2024
4
Total assets, FY2024
$3.8M

How open it is to new grantees

In FY2023, 0% of the organizations The National Fragile X Foundation funded were first-time grantees, receiving 0% of its grant dollars.

The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2024still arriving4$114k0%
FY20234$113k0%
FY20224$120kn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2022 to 2024.

Education$217kHealth$130k

Top grantees

Largest recipients by total granted, FY2022 to FY2024, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
Children's Hospital Medical Center$129,98630%
Regents of the University of Colorado$104,4853n/a
University of Minnesota$65,2663n/a
University of California Davis$47,4903n/a

Compare The National Fragile X Foundation with peer funders

About The National Fragile X Foundation

How much does The National Fragile X Foundation give?
The National Fragile X Foundation reported 4 itemized grants totaling $114,352, out of $161,470 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 4 and 4 organizations a year over FY2022 to FY2023.
What does The National Fragile X Foundation fund?
By grant dollars over FY2022 to FY2024, its largest causes are Education (63%), Health (37%).
Who are The National Fragile X Foundation's largest grantees?
By total granted over FY2022 to FY2024: Children's Hospital Medical Center ($130k), Regents of the University of Colorado ($104k), University of Minnesota ($65k).
Does The National Fragile X Foundation fund new organizations?
In FY2023, 0% of the organizations it funded were first-time grantees.
Where is The National Fragile X Foundation based?
The National Fragile X Foundation is based in DC.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 4 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home