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The Myelodysplastic Syndromes Foundation at a glanceAlso receives grants: funding profile →

· Public charity

The Myelodysplastic Syndromes Foundation

The mds foundation is a global nonprofit dedicated to improving the lives of patients with myelodysplastic syndromes (mds) through patient support, education, advocacy, research, and collaboration to advance better care and outcomes worldwide.

$483k
Granted FY2023
3
Grants FY2023
2
States reached
$117k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2023.

Health$2.1MEducation$100k
02FY2023 · 3 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 3 grants below total $236,773, the rows itemized in this filing. The $483,164 headline is the total grant expense on the return; the other $246,391 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2023

  • $10k–50k1 grant · $20k
  • $50k–250k2 grants · $217k
$100,000
Median grant
2
States reached
$2.6M
Total assets
Largest grants
RecipientAmount
H LEE MOFFITT CANCER CENTER$116,819
WASHINGTON UNIVERSITY IN ST LOUIS$100,000
UCSD SAN DIEGO MOORES CANCER CENTER$19,954
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–23) land where the poverty rate runs at 9%, against an area that typically sits at 11%. 33% of its dollars go to grantees based in above-average-need neighborhoods. Its grants skew toward lower-need ZIPs.

area typical 11%DANA FARBER CANCER INSTITUTE: $40k → 16%UCSD SAN DIEGO MOORES CANCER CENTER: $20k → 11%ALBERT EINSTEIN COLLEGE OF MEDICINE: $100k → 28%H LEE MOFFITT CANCER CTR & RSCH: $123k → 13%WASHINGTON UNIVERSITY IN ST LOUIS: $100k → 11%CHILDREN'S HOSPITAL MEDICAL CENTER: $25k → 16%MEMORIAL SLOAN KETTERING CANCER CENTER: $1.1M → 6%DANA-FARBER CANCER INSTITUTE: $25k → 16%H LEE MOFFITT CANCER CENTER: $117k → 11%LEE MOFFITT CANCER CENTER: $93k → 13%MEMORIAL SLOAN KETTERING CANCER CEN: $202k → 6%H LEE MOFFITT CANCER CENTER: $40k → 11%H LEE MOFFITT CANCER CTR & RSCH: $30k → 13%UCSD MOORES CANCER CENTER: $40k → 11%H LEE MOFFITT CANCER CENTER & RESEARCH: $25k → 13%UCSD MOORES CANCER CENTER: $25k → 11%UCSD MOORES CANCER CENTER: $20k → 11%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

89%of every dollar goes to organizations it has funded before.
$1.9M · 4 repeat orgs$245k to everyone else

4 repeat relationships: 1 still active in FY2023, 3 since wound down; 2 grantees were first funded in FY2023 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

4
2

Total granted

$1.9M
$125k

Median revenue growth · since first grant

+121%
+297%

Still filing today

75%
100%

New vs renewed · share of each year

In FY2023, 49% of grant dollars renewed an existing relationship; $120k went to new ones.

50%100%’17’18’19’20’21’23
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’23
HealthEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • MEMORIAL SLOAN-KETTERING CANCER CENTER
    2× · 2017–2020 · $1.3M · revenue +121%
  • HL
    H LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE INC
    4× · 2017–2020 · $271k · revenue +110%
  • Dana-Farber Cancer Institute Inc
    2× · 2017–2021 · $65k · revenue +162%

Funded once

  • AE
    Albert Einstein College of Medicinegraduated
    one grant, 2021 · $100k · revenue +297%
  • CH
    CHILDREN'S HOSPITAL MEDICAL CENTERgraduated
    one grant, 2017 · $25k · revenue +53%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field
04the grantee network

6 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 6 of the 8 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
6/6
Grantees still filing
6/6
Grew since first funded

Where the money sits, by cause and then by grantee

MEMORIAL SLOAN-KETTERING CANCER CENTER: $1,344,601 · HealthMEMORIAL SLOAN-KETTERING CANCER CENTERH LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE INC: $270,604 · HealthH LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE INCDana-Farber Cancer Institute Inc: $64,568 · Health+1 more: $25,000 · HealthREGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO: $242,086 · OtherREGENTS OF TH…Moores Cancer Center at UC San Diego: $19,954 · OtherMoores Cancer…WASHINGTON UNIVERSITY: $100,000 · EducationWASHINGTON…Albert Einstein College of Medicine: $100,000 · EducationAlbert Ein…
Health$1,704,773Other$262,040Education$200,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%grantee revenue →↑ funder's share of their budgetMEMORIAL SLOAN-KETTERING CANCER CENTER: $1,344,601 over 2y, 0.1% of budgetH LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE INC: $270,604 over 4y, 0.1% of budgetWASHINGTON UNIVERSITY: $100,000 over 1y, 0.0% of budgetAlbert Einstein College of Medicine: $100,000 over 1y, 0.0% of budgetDana-Farber Cancer Institute Inc: $64,568 over 2y, 0.0% of budgetCHILDREN'S HOSPITAL MEDICAL CENTER: $25,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization The Myelodysplastic Syndromes Foundation funds: left to right is the share of its income from government, bottom to top the share from The Myelodysplastic Syndromes Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%5%10%15%20%share of the org’s income from government →median 7%
  • Dana-Farber Cancer Institute Inc: 7% of income from government
no gov moneyreceives it· size = income
0get no government money at all
2report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–20%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to The Myelodysplastic Syndromes Foundation?

Find your warmest path to The Myelodysplastic Syndromes Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 8 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2023, released 2023. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Possibly out of date. A more recent filing (FY2025) is on record and reports $166k of grant expense, but none of it to a named recipient. On a Form 990 that can mean grants abroad, filed by region only (Schedule F), grants under $5,000, which are not itemized, or a schedule referenced as an attachment the e-file does not carry. The figures above are therefore from FY2023, the most recent year this funder named its grantees.

Source object · view filing

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More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home