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Florida · Public charity

The Joshua Frase Foundation for Congenital Myopathy Research Inc

Research for Myotubular Myopathy and other Congenital Myopathies, educational information, and research support.

$27k
Granted FY2019
1
Itemized grants FY2019
1
Organizations funded FY2019
0%
First-time grantees FY2019
Read the full brief
Itemized, FY2019
$10k
The rest is grants the schedule does not break out
Median grant, FY2019
$10,000
Largest grant, FY2019
$10,000
Organizations funded a year
1 to 2
FY2017 to FY2019
States reached, FY2019
1
Total assets, FY2019
$148k

How open it is to new grantees

In FY2019, 0% of the organizations The Joshua Frase Foundation for Congenital Myopathy Research Inc funded were first-time grantees, receiving 0% of its grant dollars.

New vs renewed · share of each year

In FY2019, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’18’19
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19
HealthEducation
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY20191$10k0%
FY20182$20k100%
FY20171$10kn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2019.

Health$30kEducation$10k

Top grantees

Largest recipients by total granted, FY2017 to FY2019, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
Children's Hospital Corporation$20,00020%
Unc Health Foundation Inc$10,00010%
University of Washington Foundation$10,00010%

Compare The Joshua Frase Foundation for Congenital Myopathy Research Inc with peer funders

About The Joshua Frase Foundation for Congenital Myopathy Research Inc

How much does The Joshua Frase Foundation for Congenital Myopathy Research Inc give?
The Joshua Frase Foundation for Congenital Myopathy Research Inc reported 1 itemized grants totaling $10,000, out of $27,205 in total grant expense reported on the return in its FY2019 IRS filing. It funded between 1 and 2 organizations a year over FY2017 to FY2019.
What does The Joshua Frase Foundation for Congenital Myopathy Research Inc fund?
By grant dollars over FY2017 to FY2019, its largest causes are Health (75%), Education (25%).
Who are The Joshua Frase Foundation for Congenital Myopathy Research Inc's largest grantees?
By total granted over FY2017 to FY2019: Children's Hospital Corporation ($20k), Unc Health Foundation Inc ($10k), University of Washington Foundation ($10k).
Does The Joshua Frase Foundation for Congenital Myopathy Research Inc fund new organizations?
In FY2019, 0% of the organizations it funded were first-time grantees.
Where is The Joshua Frase Foundation for Congenital Myopathy Research Inc based?
The Joshua Frase Foundation for Congenital Myopathy Research Inc is based in FL.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 3 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2019, released 2019. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Possibly out of date. A more recent filing (FY2024) is on record and reports $383 of grant expense, but none of it to a named recipient. On a Form 990 that can mean grants abroad, filed by region only (Schedule F), grants under $5,000, which are not itemized, or a schedule referenced as an attachment the e-file does not carry. The figures above are therefore from FY2019, the most recent year this funder named its grantees.

Source object · view filing

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