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Connecticut · Public charity

The Fibrolamellar Cancer Foundation

Fibrolamellar cancer foundation,(the "foundation") was established to raise awareness and research funds for fibrolamellar carcinoma, a rare form of liver cancer that is primarily seen in teens and young adults. Currently, there are no viable treatment options other than liver resection surgery. Our mission is to find a cure and reliable…

$1.7M
Granted FY2024(still arriving)
7
Itemized grants FY2024
10
Organizations funded FY2023
30%
First-time grantees FY2023
Read the full brief
Itemized, FY2024
$1.4M
The rest is grants the schedule does not break out
Median grant, FY2024
$199,996
Largest grant, FY2024
$400,000
Organizations funded a year
3 to 10
FY2017 to FY2023
States reached, FY2024
3
Total assets, FY2024
$10M

How open it is to new grantees

In FY2023, 30% of the organizations The Fibrolamellar Cancer Foundation funded were first-time grantees, receiving 64% of its grant dollars.

New vs renewed · share of each year

In FY2023, 36% of grant dollars renewed an existing relationship; $2.6M went to new ones.

50%100%’18’19’20’21’22’23
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23
HealthEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2024still arriving7$1.4M29%
FY202310$4.0M30%
FY20228$1.4M13%
FY20216$804k50%
FY20209$1.9M56%
FY20197$913k43%
FY20183$600k33%
FY20173$405kn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Science & Tech$5.2MHealth$5.0MEducation$1.3M

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

VT
WA
MI
NY
MA
OH
CA
MD
TN
NC
TX

Top grantees

Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
Dracen Pharmaceuticals Inc$2,404,1791n/a
University of Washington$2,040,0007n/a
Cornell University$1,540,21270%
University of California San Francisco$702,1584n/a
Mass General Brigham Incorporated$555,9933n/a
Johns Hopkins University$479,42550%
X-Chem Inc$400,0001n/a
St Jude Children's Research Hospital Inc$400,00020%
Children's Hospital Medical Center$367,81420%
Cancer Research Institute Inc$351,00011%
Show all 21 grantees
All grantees of The Fibrolamellar Cancer Foundation by total granted
GranteeTotal grantedYearsShare of their budget
Dracen Pharmaceuticals Inc$2,404,1791n/a
University of Washington$2,040,0007n/a
Cornell University$1,540,21270%
University of California San Francisco$702,1584n/a
Mass General Brigham Incorporated$555,9933n/a
Johns Hopkins University$479,42550%
X-Chem Inc$400,0001n/a
St Jude Children's Research Hospital Inc$400,00020%
Children's Hospital Medical Center$367,81420%
Cancer Research Institute Inc$351,00011%
Regents of the University of California at San Diego$330,0002n/a
Seven Bridges Genomics Inc$324,0001n/a
Duke University$291,66630%
The Broad Institute Inc$285,24010%
Fred Hutchinson Cancer Center$250,00020%
Utmd Anderson$250,0001n/a
University of Wisconsin Madison$233,2114n/a
Children's Hospital Corporation$99,89920%
University of North Carolina$49,9001n/a
University of Vermont$49,5001n/a
Dana-Farber Cancer Institute Inc$49,41420%

Where it is load-bearing

Each grantee by its size and the share of its budget The Fibrolamellar Cancer Foundation supplied at peak.

25%50%75%100%$100Mgrantee revenue →↑ funder's share of their budgetCornell University: $1,540,212 over 7y, 0.0% of budgetJohns Hopkins University: $479,425 over 5y, 0.0% of budgetSt Jude Children's Research Hospital Inc: $400,000 over 2y, 0.0% of budgetChildren's Hospital Medical Center: $367,814 over 2y, 0.0% of budgetCancer Research Institute Inc: $351,000 over 1y, 0.9% of budgetDuke University: $291,666 over 3y, 0.0% of budgetThe Broad Institute Inc: $285,240 over 1y, 0.1% of budgetFred Hutchinson Cancer Center: $250,000 over 2y, 0.0% of budgetChildren's Hospital Corporation: $99,899 over 2y, 0.0% of budgetDana-Farber Cancer Institute Inc: $49,414 over 2y, 0.0% of budget

Tap a dot to name the grantee.

How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 10.

Compare The Fibrolamellar Cancer Foundation with peer funders

Warm introductions · Powered by PlinthPlus

How do I get to The Fibrolamellar Cancer Foundation?

Find your warmest path to The Fibrolamellar Cancer Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

About The Fibrolamellar Cancer Foundation

How much does The Fibrolamellar Cancer Foundation give?
The Fibrolamellar Cancer Foundation reported 7 itemized grants totaling $1,402,248, out of $1,654,708 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 3 and 10 organizations a year over FY2017 to FY2023.
What does The Fibrolamellar Cancer Foundation fund?
By grant dollars over FY2017 to FY2024, its largest causes are Science & Tech (45%), Health (44%), Education (11%).
Who are The Fibrolamellar Cancer Foundation's largest grantees?
By total granted over FY2017 to FY2024: Dracen Pharmaceuticals Inc ($2.4M), University of Washington ($2.0M), Cornell University ($1.5M).
Does The Fibrolamellar Cancer Foundation fund new organizations?
In FY2023, 30% of the organizations it funded were first-time grantees.
Where is The Fibrolamellar Cancer Foundation based?
The Fibrolamellar Cancer Foundation is based in CT.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 22 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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