· Public charity
The Cute Syndrome Foundation
Our mission is to raise awareness of scn8a mutations, fund the the scientists researching scn8a, and support the families who are affected by scn8a.
Where the money goes
Grants by size, and the largest recipients.
| Recipient | Amount |
|---|---|
| Individual grant recipient | $25,000 |
Where the grant dollars land
Across the US and around the world.
Grants abroad, by region: $29k on the FY2024 return
Schedule F, as filed: 3 regions, all to individuals. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: CONNOR JAMES SMITH PATIENT ASSISTANCE GRANT · FAMILY TRAVEL GRANTS · CUTE CONNECTION GRANTS
Stated purpose: CONNOR JAMES SMITH PATIENT ASSISTANCE GRANT · FAMILY TRAVEL GRANTS
Stated purpose: FAMILY TRAVEL GRANTS
How this is measured
0 grantees tracked through their own filings, 2021–2021.
Each grant beside the grantee’s revenue from every source, year by year.
How this is measured
Counted here: distinct organizations funded across 2021 to 2021, not grant rows in a single year, so this will not match the grant count on the cover. 0 of the 1 grantees resolved in that span have returns of their own we could reconcile.
Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.
Each grantee by its size and the funder’s share of it; top left is load-bearing
Grantee by grantee: a decade per organization, before and after funding
A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.
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