New York · Public charity
The Barth Syndrome Foundation
THE BARTH SYNDROME FOUNDATION is an engaged, global community whose mission is saving lives through education, advances in treatments, and finding a cure for barth syndrome.
- $433k
- Granted FY2024(still arriving)
- 4
- Itemized grants FY2024
- 3
- Organizations funded FY2023
- 0%
- First-time grantees FY2023
- Itemized, FY2024
- $236k
- The rest is grants the schedule does not break out
- Median grant, FY2024
- $75,000
- Largest grant, FY2024
- $99,519
- Organizations funded a year
- 3 to 5
- FY2017 to FY2023
- States reached, FY2024
- 3
- Total assets, FY2024
- $5.6M
How open it is to new grantees
In FY2023, 0% of the organizations The Barth Syndrome Foundation funded were first-time grantees, receiving 0% of its grant dollars.
New vs renewed · share of each year
In FY2023, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2024still arriving | 3 | $236k | 100% |
| FY2023 | 3 | $128k | 0% |
| FY2022 | 4 | $303k | 75% |
| FY2021 | 3 | $184k | 100% |
| FY2020 | 4 | $205k | 75% |
| FY2019 | 5 | $337k | 60% |
| FY2018 | 3 | $154k | 100% |
| FY2017 | 4 | $201k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Children's Hospital Corporation | $299,967 | 4 | 0% |
| Wayne State University Foundation | $100,000 | 2 | 0% |
| New York University | $96,227 | 1 | 0% |
| Duke University | $96,106 | 2 | 0% |
| American Heart Association Inc | $50,466 | 2 | 0% |
| University of Miami | $50,000 | 1 | 0% |
| Regents of the University of Colorado | $40,000 | 1 | n/a |
Plus 15 recipients with no EIN on record ($1.0M), not named here.
About The Barth Syndrome Foundation
- How much does The Barth Syndrome Foundation give?
- The Barth Syndrome Foundation reported 4 itemized grants totaling $235,746, out of $432,746 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 3 and 5 organizations a year over FY2017 to FY2023.
- What does The Barth Syndrome Foundation fund?
- By grant dollars over FY2017 to FY2024, its largest causes are Health (94%), Education (3%), Science & Tech (3%).
- Who are The Barth Syndrome Foundation's largest grantees?
- By total granted over FY2017 to FY2024: Children's Hospital Corporation ($300k), Wayne State University Foundation ($100k), New York University ($96k).
- Does The Barth Syndrome Foundation fund new organizations?
- In FY2023, 0% of the organizations it funded were first-time grantees.
- Where is The Barth Syndrome Foundation based?
- The Barth Syndrome Foundation is based in NY.
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