Connecticut · Public charity
Rett Syndrome Research Trust Inc
The organization's mission is focused on the development of treatments and cures for rett syndrome and related mecp2 disorders.
- $5.4M
- Granted FY2025(still arriving)
- 17
- Grants FY2025
- 16
- Organizations funded FY2024
- 75%
- First-time grantees FY2024
- Median grant, FY2025
- $213,610
- Largest grant, FY2025
- $1,100,000
- Organizations funded a year
- 15 to 23
- FY2018 to FY2024
- States reached, FY2025
- 1
- Total assets, FY2025
- $21M
How open it is to new grantees
In FY2024, 75% of the organizations Rett Syndrome Research Trust Inc funded were first-time grantees, receiving 85% of its grant dollars.
New vs renewed · share of each year
In FY2024, 15% of grant dollars renewed an existing relationship; $3.3M went to new ones.
RenewedFirst-time
Where new relationships form · theme of each grantee’s first grant
HealthEducationScience & TechOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 17 | $5.4M | 53% |
| FY2024 | 16 | $3.9M | 75% |
| FY2023 | 15 | $6.1M | 47% |
| FY2022 | 17 | $3.1M | 35% |
| FY2021 | 21 | $4.0M | 43% |
| FY2020 | 23 | $3.8M | 57% |
| FY2019 | 15 | $5.3M | 20% |
| FY2018 | 17 | $6.9M | 47% |
100% classified
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.
Health$42MEducation$7.4MScience & Tech$1.0MFood & Nutrition$186kCommunity Improvement$59k
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
ME
WA
NY
MA
OR
OH
PA
NJ
CT
CA
NC
GA
TX
Top grantees
Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| University of Massachusetts Amherst Foundation Inc | $5,289,935 | 5 | 31% |
| Regents of the University of California at San Diego | $2,090,104 | 7 | n/a |
| Emory University | $1,538,030 | 2 | n/a |
| Baylor College of Medicine | $1,059,981 | 5 | 0% |
| Fred Hutchinson Cancer Research Center | $802,630 | 4 | 0% |
| Q-State Biosciences Inc | $801,467 | 2 | n/a |
| Whitehead Institute for Biomedical Research | $734,850 | 4 | 0% |
| Oregon Health & Science University Foundation | $725,423 | 5 | 1% |
| Beam Therapeutics | $639,300 | 1 | n/a |
| Case Western Reserve University | $614,124 | 3 | 0% |
Show all 24 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| University of Massachusetts Amherst Foundation Inc | $5,289,935 | 5 | 31% |
| Regents of the University of California at San Diego | $2,090,104 | 7 | n/a |
| Emory University | $1,538,030 | 2 | n/a |
| Baylor College of Medicine | $1,059,981 | 5 | 0% |
| Fred Hutchinson Cancer Research Center | $802,630 | 4 | 0% |
| Q-State Biosciences Inc | $801,467 | 2 | n/a |
| Whitehead Institute for Biomedical Research | $734,850 | 4 | 0% |
| Oregon Health & Science University Foundation | $725,423 | 5 | 1% |
| Beam Therapeutics | $639,300 | 1 | n/a |
| Case Western Reserve University | $614,124 | 3 | 0% |
| California Institute of Technology | $601,197 | 3 | 0% |
| Coriell Institute for Medical Research Inc | $413,899 | 4 | 1% |
| Oregon Health & Science University | $396,313 | 1 | n/a |
| University of North Carolina at Chapel Hill | $320,816 | 2 | n/a |
| Montefiore Medical Center | $303,000 | 5 | 0% |
| University of Rochester | $218,094 | 2 | 0% |
| Nationwide Children's Hospital Inc | $152,489 | 2 | n/a |
| Children's Hospital Corporation | $136,433 | 2 | 0% |
| Texas Children's Hospital | $125,000 | 1 | 0% |
| The Ohio State University | $68,515 | 1 | n/a |
| The Children's Hospital of Philadelphia | $62,587 | 1 | 0% |
| Armagen | $42,000 | 1 | n/a |
| Autism Science Foundation | $17,500 | 1 | 2% |
| Washington State University | $10,000 | 1 | n/a |
Plus 57 recipients with no EIN on record ($26M), not named here.
Where it is load-bearing
Rett Syndrome Research Trust Inc supplied at least a quarter of the budget for 1 of its grantees at some point. The chart plots its 14 largest grantees; load-bearing ones sit top left.
Tap a dot to name the grantee.
How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 14.
About Rett Syndrome Research Trust Inc
- How much does Rett Syndrome Research Trust Inc give?
- Rett Syndrome Research Trust Inc reported 17 grants totaling $5,375,683 in its FY2025 IRS filing. It funded between 15 and 23 organizations a year over FY2018 to FY2024.
- What does Rett Syndrome Research Trust Inc fund?
- By grant dollars over FY2017 to FY2025, its largest causes are Health (83%), Education (14%), Science & Tech (2%).
- Who are Rett Syndrome Research Trust Inc's largest grantees?
- By total granted over FY2017 to FY2025: University of Massachusetts Amherst Foundation Inc ($5.3M), Regents of the University of California at San Diego ($2.1M), Emory University ($1.5M).
- Does Rett Syndrome Research Trust Inc fund new organizations?
- In FY2024, 75% of the organizations it funded were first-time grantees.
- Where is Rett Syndrome Research Trust Inc based?
- Rett Syndrome Research Trust Inc is based in CT.
Play a game based on Rett Syndrome Research’s filings →
More from the funding graph
The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home