· Public charity
Rett Syndrome Research Trust Inc
The organization's mission is focused on the development of treatments and cures for rett syndrome and related mecp2 disorders.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2025.
Where the money goes
Your grants by size, and where they go.
By grant size · FY2025
- Under $10k1 grant · $9k
- $10k–50k2 grants · $55k
- $50k–250k7 grants · $953k
- $250k+7 grants · $4.4M
| Recipient | Amount |
|---|---|
| Individual grant recipient | $1,100,000 |
| PROFLUENT | $1,000,000 |
| VIRALGEN | $750,000 |
| UNIVERSITY OF CALIFORNIA DAVIS | $474,894 |
| Individual grant recipient | $419,317 |
| 4BASEBIO | $350,000 |
| Individual grant recipient | $300,000 |
| EVOX | $240,000 |
| DUKE | $213,610 |
| RESPLICE | $130,000 |
| Individual grant recipient | $123,762 |
| RETT SYNDROME GLOBAL REGISTRY | $110,490 |
| UNIVERSITY OF MASSACHUSETTS | $84,791 |
| Individual grant recipient | $50,000 |
| CHILDREN'S HOSPITAL OF MONTEFIORE | $40,123 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY17–25) land where the poverty rate runs at 11%, against an area that typically sits at 11%. 29% of your dollars go to grantees based in above-average-need neighborhoods. Your grants skew toward lower-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
Grants abroad, by region — $695k on the FY2025 return
Schedule F, as filed: 1 region. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +65% since the first grant, against +32% for the ones you funded once.
38 repeat relationships — 8 still active in FY2025, 30 since wound down; 9 grantees were first funded in FY2025 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 24% of grant dollars renewed an existing relationship; $4.1M went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
UNIVERSITY OF MASSACHUSETTS AMHERST FOUNDATION INC5× · 2019–2023 · $5.3M · revenue +653% · 31% of their budget- BCBaylor College of Medicine5× · 2017–2022 · $1.1M · revenue +67%
- FHFRED HUTCHINSON CANCER RESEARCH CENTER4× · 2017–2022 · $803k · revenue +27%
Funded once
- OOMBDone grant, 2017 · $1.4M
- MMITone grant, 2024 · $1.2M
- PPROQRone grant, 2023 · $1.1M
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
Education, research, medical services and other public services.
Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.
Education and Research
The University of New Haven is a student-centered comprehensive university with an emphasis on excellence in liberal arts and professional education. Our mission is to prepare our students to lead purposeful and fulfilling lives in a…
Research, education and general - princeton university is a private not-for-profit, non-sectarian institution of higher learning with approximately 5,700 undergraduate and 3,300 graduate students. 2,500 students graduated in the 2024-2025…
Organization's mission: boston university is an international, comprehensive, private research university, committed to educating students to be reflective, resourceful individuals ready to live, adapt, and lead in an interconnected world.…
We educate the next generation of leaders to improve the health of our society.
As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…
The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…
The university's goal in the coming decade is to advance learning through the integration of teaching, research and service to others. the core of this goal is to prepare graduates to engage with the world and lead lives of meaning. to do…
Dartmouth College educates the most promising students and prepares them for a lifetime of learning and of responsible leadership, through a faculty dedicated to teaching and the creation of knowledge.
The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.
For reference, the grantee most central to the portfolio’s shape is Texas Children's Hospital and the most unlike its peers is Oregon Health & Science University Foundation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
For each theme you fund, this compares how the sector’s money is shifting with how your own giving is shifting.
Sector change and giving change are each shown relative to their own range, growing (right) or shrinking (left); both normalized, so inflation isn’t mistaken for growth.
Your grantees are a median of 57 years old; the field is 16. You back the established end — and your money leans older still.
The field is 22% startups (under 5 years old) — 0% of your grantees by number, and just 0% of your money.
The orgs you fund almost never close — 4% lost their exemption, against 13% of the field you don’t fund.
Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.
19 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 19 of the 85 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds Massachusetts Institute of Technology ↗
- Who funds UNIVERSITY OF MASSACHUSETTS AMHERST FOUNDATION INC ↗
- Who funds President and Fellows of Harvard College ↗
- Who funds Baylor College of Medicine ↗
- Who funds FRED HUTCHINSON CANCER RESEARCH CENTER ↗
- Who funds WHITEHEAD INSTITUTE FOR BIOMEDICAL RESEARCH ↗
- Who funds OREGON HEALTH & SCIENCE UNIVERSITY FOUNDATION ↗
- Who funds CASE WESTERN RESERVE UNIVERSITY ↗
- Who funds CALIFORNIA INSTITUTE OF TECHNOLOGY ↗
- Who funds CORIELL INSTITUTE FOR MEDICAL RESEARCH INC ↗
- Who funds MONTEFIORE MEDICAL CENTER ↗
Government reliance of your grantees
Every dot is one organization Rett Syndrome Research Trust Inc funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.
- Coriell Institute for Medical Research Inc — 44% of income from government
- Massachusetts Institute of Technology — 35% of income from government
- Yale University — 12% of income from government
- Children's Hospital Corporation — 10% of income from government
- President and Fellows of Harvard College — 7% of income from government
- Whitehead Institute for Biomedical Research — 7% of income from government
- Oregon Health & Science University Foundation — 1% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.