Utah · Public charity
Pachyonychia Congenita Fund
The organization's mission is to fight for a cure for the pachyonychia congenita disease, connect and help patients, and empower research.
- $465k
- Granted FY2024(still arriving)
- 3
- Itemized grants FY2024
- 1
- Organizations funded FY2022
- 0%
- First-time grantees FY2022
- Itemized, FY2024
- $247k
- The rest is grants the schedule does not break out
- Median grant, FY2024
- $97,500
- Largest grant, FY2024
- $99,206
- Organizations funded a year
- 1 to 1
- FY2021 to FY2022
- States reached, FY2024
- 3
- Total assets, FY2024
- $3.0M
How open it is to new grantees
In FY2022, 0% of the organizations Pachyonychia Congenita Fund funded were first-time grantees, receiving 0% of its grant dollars.
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2024still arriving | 3 | $247k | 100% |
| FY2022 | 1 | $25k | 0% |
| FY2021 | 1 | $100k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2019 to 2024.
Top grantees
Largest recipients by total granted, FY2021 to FY2024, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Anyi Therapeutics Inc | $125,000 | 2 | n/a |
| Mass General Brigham Incorporated | $99,206 | 1 | n/a |
| Johns Hopkins University | $97,500 | 1 | 0% |
| The University of Texas Southwestern Medical Cente | $50,000 | 1 | n/a |
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About Pachyonychia Congenita Fund
- How much does Pachyonychia Congenita Fund give?
- Pachyonychia Congenita Fund reported 3 itemized grants totaling $246,706, out of $465,221 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 1 and 1 organizations a year over FY2021 to FY2022.
- What does Pachyonychia Congenita Fund fund?
- By grant dollars over FY2021 to FY2024, its largest causes are Health (71%), Science & Tech (29%).
- Who are Pachyonychia Congenita Fund's largest grantees?
- By total granted over FY2021 to FY2024: Anyi Therapeutics Inc ($125k), Mass General Brigham Incorporated ($99k), Johns Hopkins University ($98k).
- Does Pachyonychia Congenita Fund fund new organizations?
- In FY2022, 0% of the organizations it funded were first-time grantees.
- Where is Pachyonychia Congenita Fund based?
- Pachyonychia Congenita Fund is based in UT.
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