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National Vulvodynia Association Inc at a glanceAlso receives grants: funding profile →

· Public charity

National Vulvodynia Association Inc

To provide support services and treatment option information to women with vulvodynia and to the health care community.

$317k
Granted FY2025still arriving
6
Grants FY2025still arriving
5
States reached
$92k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
0194% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$185kScience & Tech$144kEducation$86kOther$0
02FY2025 · 6 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 6 grants below total $267,333, the rows itemized in this filing. The $317,333 headline is the total grant expense on the return; the other $50,000 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • $10k–50k4 grants · $115k
  • $50k–250k2 grants · $152k
$38,900
Median grant
5
States reached
$4.1M
Total assets
Largest grants
RecipientAmount
The Regents of the University of California Los Angeles$92,300
University of Rochester$59,800
Ohio State University$38,900
Lumina Medical LLC$33,333
The Centers for Vulvovaginal Disorders$25,000
Pelvic Health Fund$18,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 12%, against an area that typically sits at 10%. 75% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%STATUS PLUS LLC: $35k → 6%UCI FOUNDATION: $8k → 10%The Regents of the University of California Los Angeles: $92k → 14%GENEVA HOSPITAL: $6k → 10%UNIVERSITY OF ROCHESTER: $28k → 14%TEXAS TECH UNIVERSITY: $30k → 12%The Centers for Vulvovaginal Disorders: $25k → 14%South Florida Veterans Affair: $50k → 15%UNIVERSITY OF MICHIGAN: $25k → 14%OREGON HEALTH & SCIENCE UNIVERSITY: $43k → 12%Pelvic Health Fund: $18k → 8%Duke University: $50k → 10%UNIVERSITY OF UTAH: $17k → 8%Ohio State University: $39k → 15%Status Plus LLC: $35k → 6%Lumina Medical LLC: $33k → 14%University of Rochester: $60k → 14%OREGON HEALTH & SCIENCE UNIVERSITY: $15k → 12%OSHU OPAM: $54k → 12%Oregon Health & Science University: $14k → 12%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

MN
MI
NY
OR
CA
UT
TN
NC
TX
FL

Grants abroad, by region: $50k on the FY2025 return

Schedule F, as filed: 1 region. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Middle East and North Africa$50k · 100% · 1 grant

Stated purpose: Research

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

29%of every dollar goes to organizations it has funded before.
$209k · 3 repeat orgs$507k to everyone else

Grantees it renews have grown median revenue +65% since the first grant, against +40% for those funded once.

3 repeat relationships: 1 still active in FY2025, 2 since wound down; 5 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

3
11

Total granted

$209k
$299k

Median revenue growth · since first grant

+65%
+40%

Still filing today

67%
36%

New vs renewed · share of each year

In FY2025, 22% of grant dollars renewed an existing relationship; $208k went to new ones.

50%100%’17’18’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’21’22’23’24’25
EducationPublic BenefitHealthInternationalOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • UNIVERSITY OF ROCHESTER
    2× · 2018–2025 · $88k · revenue +65%
  • OH
    OREGON HEALTH & SCIENCE UNIVERSITY
    3× · 2017–2024 · $72k
  • AF
    AMERICAN FRIENDS OF WGH WESTERN GALILEE HOSPITAL NAHARIYA C/O THE LAPIN GROUP
    2× · 2023–2024 · $50k · revenue -42%

Funded once

  • IG
    Individual grant recipient
    one grant, 2022 · $54k
  • DUKE UNIVERSITY
    one grant, 2024 · $50k · revenue +6%
  • SF
    South Florida Veterans Affairs Foundation For Research & Education Inc
    one grant, 2018 · $50k · revenue +21%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field
04the grantee network

6 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 6 of the 19 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
6/6
Grantees still filing
5/6
Grew since first funded

Where the money sits, by cause and then by grantee

REGENTS UNIV OF CALIFORNIA: $92,300 · OtherREGENTS UNIV OF CALIFORNIAOREGON HEALTH & SCIENCE UNIVERSITY: $71,500 · OtherOREGON HEALTH & SCIENCE UNIVERSITYIndividual grant recipient: $54,343 · OtherIndividual grant recipientTHE OHIO STATE UNIVERSITY: $38,900 · OtherTHE OHIO STATE UNIVERSITYSTATUS PLUS LLC: $35,000 · OtherSTATUS PLUS LLCLumina Medical LLC: $33,333 · OtherLumina Medical LLCTEXAS TECH UNIVERSITY: $30,000 · OtherTEXAS TECH UNIVERSITYThe Centers for Vulvovaginal Disorders: $25,000 · OtherThe Centers for Vulvovaginal DisordersREGENTS OF THE UNIVERSITY OF MICHIGAN: $25,000 · OtherREGENTS OF THE UNIVERSITY OF MICHIGANPelvic Health Fund: $18,000 · OtherTHE UNIVERSITY OF TENNESSEE: $17,650 · OtherUNIVERSITY OF UTAH: $16,666 · Other+1 more: $7,500 · OtherUNIVERSITY OF ROCHESTER: $87,800 · EducationUNIVERSITY OF ROCHESTE…DUKE UNIVERSITY: $50,000 · EducationDUKE UNIVERSITYUNIVERSITY OF CALIFORNIA IRVINE FOUNDATION: $7,500 · EducationAMERICAN FRIENDS OF WGH WESTERN GALILEE HOSPITAL NAHARIYA C/O THE LAPIN GROUP: $50,000 · InternationalSouth Florida Veterans Affairs Foundation For Research & Education Inc: $50,000 · Public BenefitGENEVA GENERAL HOSPITAL: $5,820 · Health
Other$465,192Education$145,300International$50,000Public Benefit$50,000Health$5,820

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetUNIVERSITY OF ROCHESTER: $87,800 over 2y, 0.0% of budgetAMERICAN FRIENDS OF WGH WESTERN GALILEE HOSPITAL NAHARIYA C/O THE LAPIN GROUP: $50,000 over 2y, 2.7% of budgetDUKE UNIVERSITY: $50,000 over 1y, 0.0% of budgetSouth Florida Veterans Affairs Foundation For Research & Education Inc: $50,000 over 1y, 2.0% of budgetUNIVERSITY OF CALIFORNIA IRVINE FOUNDATION: $7,500 over 1y, 0.0% of budgetGENEVA GENERAL HOSPITAL: $5,820 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds UNIVERSITY OF ROCHESTER ↗
  • Who funds AMERICAN FRIENDS OF WGH WESTERN GALILEE HOSPITAL NAHARIYA C/O THE LAPIN GROUP ↗
  • Who funds DUKE UNIVERSITY ↗
  • Who funds South Florida Veterans Affairs Foundation For Research & Education Inc ↗
  • Who funds UNIVERSITY OF CALIFORNIA IRVINE FOUNDATION ↗
  • Who funds GENEVA GENERAL HOSPITAL ↗

How much its grantees rely on government

Each dot is one organization National Vulvodynia Association Inc funds: left to right is the share of its income from government, bottom to top the share from National Vulvodynia Association Inc. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%8%15%22%30%share of the org’s income from government →
    no gov moneyreceives it· size = income
    0get no government money at all
    2report government grants on their 990 we could not trace to a source (not plotted)
    0rely on government for over half their income
    ⤢ axis zoomed · 0–30%
    typical government reliance, FY20–25
    How this is measured
    Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

    On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 19 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

    How this is measured
    Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

    Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

    Source object · view filing

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    More from the funding graph

    The unnamed billions
    grants reported with no recipient in the public record
    The regranting layer
    51% of grant dollars land in the regranting layer
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    $9.7B circulates between donor-advised funds
    The endowment market
    who holds foundation money, and what just moved
    The camps
    funders cluster by geography, not ideology
    By state
    where grant money is based, and what stays home