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National Tay-Sachs & Allied Diseases Ass at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

National Tay-Sachs & Allied Diseases Ass

Ntsad leads the worldwide fight to treat and cure tay-sachs, canavan, gm1, and sandhoff diseases by driving research, forging collaboratiion, and fostering community, supporting families is the center of everything we do.

$316k
Granted FY2023
3
Grants FY2023
2
States reached
$143k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2023.

Health$1.1M
02FY2023 · 3 grants

Where the money goes

Grants by size, and the largest recipients.

$112,000
Median grant
2
States reached
$2.8M
Total assets
Largest grants
RecipientAmount
UMASS CHAN MEDICAL CENTER$142,875
AUBURN UNIVERSITY AL$112,000
MGH INST OF HEALTH PROFESSIONS$55,917
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–23) land where the poverty rate runs at 17%, against an area that typically sits at 14%. 95% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 14%DANA-FARBER CANCER INSTITUTE: $24k → 16%CHILDREN'S HOSPITAL OF PHILADELPHIA: $20k → 22%GREENWOOD GENETIC CENTER: $30k → 18%BIOSTRATEGIES LC: $14k → 17%AUBURN UNIVERSITY AL: $112k → 15%WASHINGTON UNIVERSITY: $32k → 21%ST JUDE CHILDRENS RESEARCH HOSPITAL: $32k → 17%NATIONAL HUMAN GENOME RESEARCH INSTITUTE: $18k → 8%UNIVERSITY OF MARYLAND SCHOOL OF MEDICINE: $21k → 19%DANA-FARBER CANCER INSTITUTE: $16k → 16%UNIVERSITY OF PA: $15k → 22%BIOSTRATEGIES LC: $14k → 17%AUBURN UNIVERSITY: $34k → 15%WASHINGTON UNIVERSITY: $32k → 21%ST JUDE CHILDRENS RESEARCH HOSPITAL: $24k → 17%NATIONAL HUMAN GENOME RESEARCH INSTITUTE: $18k → 8%DANA-FARBER CANCER INSTITUTE: $8k → 16%UNIVERSITY OF PA: $15k → 22%AUBURN UNIVERSITY: $10k → 15%WASHINGTON UNIVERSITY: $16k → 21%ST JUDE CHILDRENS RESEARCH HOSPITAL: $24k → 17%MGH INST OF HEALTH PROFESSIONS: $56k → 16%CHILDREN'S HOSPITAL OF PHILADELPHIA: $10k → 22%MASS GENERAL HOSPITAL: $30k → 16%CHILDREN'S HOSPITAL OF PHILADELPHIA: $10k → 22%MASS GENERAL HOSPITAL: $27k → 16%MASS GENERAL HOSPITAL: $17k → 16%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

MA
PA
MO
MD
AR
TN
SC
AL
GA
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

90%of every dollar goes to organizations it has funded before.
$989k · 11 repeat orgs$112k to everyone else

Grantees it renews have grown median revenue +88% since the first grant, against +61% for those funded once.

11 repeat relationships: 3 still active in FY2023, 8 since wound down.

How the two cohorts compare

Re-uppedFunded once

Organizations

11
4

Total granted

$989k
$112k

Median revenue growth · since first grant

+88%
+61%

Still filing today

45%
75%

New vs renewed · share of each year

In FY2023, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’17’18’19’20’21’23
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’23
HealthEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • ST JUDE CHILDREN'S RESEARCH HOSPITAL INC
    3× · 2019–2021 · $80k · revenue +99%
  • WASHINGTON UNIVERSITY
    3× · 2019–2021 · $80k · revenue +44%
  • Dana-Farber Cancer Institute Inc
    4× · 2018–2021 · $48k · revenue +123%

Funded once

  • WI
    WEIZMANN INSTITUTE OF SCIENCE
    one grant, 2021 · $48k
  • GG
    GREENWOOD GENETIC CENTER INCgraduated
    4× · 2018–2021 · $30k · revenue +37%
  • UO
    UNIVERSITY OF MARYLAND BALTIMORE FOUNDATION INCgraduated
    2× · 2020–2021 · $21k · revenue +70%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
2
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
3
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
4
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
5
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
6
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
7
Cedars-Sinai Medical Center

As a leading academic healthcare organization, our mission is to elevate the health status of the communities we serve.(see schedule o for continuation)(continued)-we deliver exceptional healthcare enhanced by research and education-we…

Health
8
Truman Medical Center Incorporated

University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.

Health
9
University of Chicago Medical Center

Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…

Health
10
Memorial Sloan-Kettering Cancer Center

Leadership in the prevention, treatment, and cure of cancer through excellence, vision and cost effectiveness in patient care, outreach programs, research, and education.

Health
11
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
12
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
How this is measured
The grantee most central to the portfolio’s shape is Emory University; the most unlike its peers is Dana-Farber Cancer Institute Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

9 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 9 of the 16 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
9/9
Grantees still filing
9/9
Grew since first funded

Where the money sits, by cause and then by grantee

UNIVERSITY OF MASSACHUSETTS: $343,339 · OtherUNIVERSITY OF MASSACHUSETTSAUBURN UNIVERSITY: $155,200 · OtherAUBURN UNIVERSITYMASS GENERAL BRIGHAM INCORPORATED: $129,421 · OtherMASS GENERAL BRIGHAM INCORPORATEDWEIZMANN INSTITUTE OF SCIENCE: $48,000 · OtherWEIZMANN INSTITUTE OF SCIENCENATIONAL HUMAN GENOME RESEARCH INSTITUTE: $35,000 · OtherQUEEN'S UNIVERSITY: $32,000 · OtherBIOSTRATEGIES LC: $28,800 · OtherST JUDE CHILDREN'S RESEARCH HOSPITAL INC: $80,000 · HealthST JUDE CHILDREN'S …Dana-Farber Cancer Institute Inc: $48,000 · HealthDana-Farber Cancer …THE CHILDREN'S HOSPITAL OF PHILADELPHIA: $39,971 · HealthTHE CHILDREN'S HOSP…GREENWOOD GENETIC CENTER INC: $30,000 · HealthGREENWOOD GENETIC C…WASHINGTON UNIVERSITY: $80,000 · EducationWASHINGTON UNIVE…TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $29,846 · EducationTRUSTEES OF THE …UNIVERSITY OF MARYLAND BALTIMORE FOUNDATION INC: $21,000 · EducationUNIVERSITY OF MA…New York University: $17,316 · EducationNew York Univers…Emory University: $13,000 · EducationEmory University
Other$771,760Health$197,971Education$161,162

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$100Mgrantee revenue →↑ funder's share of their budgetST JUDE CHILDREN'S RESEARCH HOSPITAL INC: $80,000 over 3y, 0.0% of budgetWASHINGTON UNIVERSITY: $80,000 over 3y, 0.0% of budgetDana-Farber Cancer Institute Inc: $48,000 over 4y, 0.0% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $39,971 over 5y, 0.0% of budgetGREENWOOD GENETIC CENTER INC: $30,000 over 4y, 0.1% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $29,846 over 5y, 0.0% of budgetUNIVERSITY OF MARYLAND BALTIMORE FOUNDATION INC: $21,000 over 2y, 0.1% of budgetNew York University: $17,316 over 5y, 0.0% of budgetEmory University: $13,000 over 4y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds ST JUDE CHILDREN'S RESEARCH HOSPITAL INC ↗
  • Who funds WASHINGTON UNIVERSITY ↗
  • Who funds Dana-Farber Cancer Institute Inc ↗
  • Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
  • Who funds GREENWOOD GENETIC CENTER INC ↗
  • Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
  • Who funds UNIVERSITY OF MARYLAND BALTIMORE FOUNDATION INC ↗
  • Who funds New York University ↗
  • Who funds Emory University ↗

How much its grantees rely on government

Each dot is one organization National Tay-Sachs & Allied Diseases Ass funds: left to right is the share of its income from government, bottom to top the share from National Tay-Sachs & Allied Diseases Ass. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%5%10%15%20%share of the org’s income from government →median 7%
  • Dana-Farber Cancer Institute Inc: 7% of income from government
  • University of Maryland Baltimore Foundation Inc: 3% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–20%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 16 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2023, released 2023. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Possibly out of date. A more recent filing (FY2025) is on record and reports no grant expense, so the figures above are from FY2023, the most recent year this funder made grants.

Source object · view filing

Play a game based on National Tay-Sachs & Allied Diseases Ass’ filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home