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Florida · Public charity

Lymphangiomatosis & Gorhams Disease Alliance Inc

Worldwide patient support program which includes a patient registry, a website with rare disease information and patient discussion forum.

$79k
Granted FY2024(still arriving)
3
Itemized grants FY2024
1
Organizations funded FY2021
Read the full brief
Itemized, FY2024
$76k
The rest is grants the schedule does not break out
Median grant, FY2024
$25,000
Largest grant, FY2024
$30,882
States reached, FY2024
2
Total assets, FY2024
$354k
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2020 to 2024.

Health$83kEducation$57kRecreation & Sports$10k

Top grantees

Largest recipients by total granted, FY2021 to FY2024, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
The Lymphatic Malformation Institute$25,00019%
The Children's Hospital of Philadelphia$20,00010%
Uplift Athletes$10,0001n/a

Compare Lymphangiomatosis & Gorhams Disease Alliance Inc with peer funders

Warm introductions · Powered by PlinthPlus

How do I get to Lymphangiomatosis & Gorhams Disease Alliance Inc?

Find your warmest path to Lymphangiomatosis & Gorhams Disease Alliance Inc through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

About Lymphangiomatosis & Gorhams Disease Alliance Inc

How much does Lymphangiomatosis & Gorhams Disease Alliance Inc give?
Lymphangiomatosis & Gorhams Disease Alliance Inc reported 3 itemized grants totaling $75,882, out of $79,247 in total grant expense reported on the return in its FY2024 IRS filing.
What does Lymphangiomatosis & Gorhams Disease Alliance Inc fund?
By grant dollars over FY2021 to FY2024, its largest causes are Health (55%), Education (38%), Recreation & Sports (7%).
Who are Lymphangiomatosis & Gorhams Disease Alliance Inc's largest grantees?
By total granted over FY2021 to FY2024: The Lymphatic Malformation Institute ($25k), The Children's Hospital of Philadelphia ($20k), Uplift Athletes ($10k).
Where is Lymphangiomatosis & Gorhams Disease Alliance Inc based?
Lymphangiomatosis & Gorhams Disease Alliance Inc is based in FL.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 4 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Possibly out of date. A more recent filing (FY2025) is on record and reports $26k of grant expense, but none of it to a named recipient. On a Form 990 that can mean grants abroad, filed by region only (Schedule F), grants under $5,000, which are not itemized, or a schedule referenced as an attachment the e-file does not carry. The figures above are therefore from FY2024, the most recent year this funder named its grantees.

Source object · view filing

Play a game based on Lymphangiomatosis & Gorhams Disease Alliance’s filings →

More from the funding graph

The unnamed billions
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The endowment market
who holds foundation money, and what just moved
The camps
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By state
where grant money is based, and what stays home