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Livelikelou Foundation at a glanceAlso receives grants: funding profile →

· Public charity

Livelikelou Foundation

The live like lou foundation's mission is to create and connect communities to stimulate emerging als research and uniquely support families affected by lou gehrig's disease.

$1.4M
Granted FY2024still arriving
6
Grants FY2024still arriving
4
States reached
$570k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2020 to 2024.

Health$2.7MMembership Benefit$455kHuman Services$85kEducation$10k
02FY2024 · 6 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 6 grants below total $890,950, the rows itemized in this filing. The $1,375,006 headline is the total grant expense on the return; the other $484,056 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2024

  • $10k–50k1 grant · $19k
  • $50k–250k4 grants · $302k
  • $250k+1 grant · $570k
$75,000
Median grant
4
States reached
$3.2M
Total assets
Largest grants
RecipientAmount
VANDERBILT UNIVERSITY MEDICAL CENTER$570,000
EMORY UNIVERSITY$100,000
UNIVERSITY OF SOUTHERN CALIFORNIA$75,000
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SF$75,000
THE REGENTS OF THE UNIVERSITY OF MICHIGAN$51,950
PERMOBIL FOUNDATION$19,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Its human-services grants (FY20–24, $131k) land where the poverty rate runs at 9%, against an area that typically sits at 11%. 0% of those dollars go to grantees based in above-average-need neighborhoods. Its grants skew toward lower-need ZIPs.

area typical 11%PERMOBIL FOUNDATION: $19k → 7%Hope Loves Company: $25k → 11%Permobil Foundation: $15k → 7%Hope Loves Company: $20k → 11%Permobil Foundation: $12k → 7%Hope Loves Company: $20k → 11%Hope Loves Company: $20k → 11%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

MN
MI
OH
PA
NJ
CA
MD
AZ
TN
GA

Grants abroad, by region: $154k on the FY2024 return

Schedule F, as filed: 2 regions, $150k to organizations and $4k to individuals. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$150k · 97% · 2 grants

Stated purpose: ALS RESEARCH

North America (Canada and Mexico)$4k · 3% · 1 person

Stated purpose: SCHOLARSHIP

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

95%of every dollar goes to organizations it has funded before.
$2.8M · 8 repeat orgs$160k to everyone else

8 repeat relationships: 4 still active in FY2024, 4 since wound down; 1 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

8
3

Total granted

$2.8M
$85k

Median revenue growth · since first grant

+16%
+45%

Still filing today

88%
67%

New vs renewed · share of each year

In FY2024, 91% of grant dollars renewed an existing relationship; $75k went to new ones.

50%100%’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’20’21’22’23’24
EducationHealthHuman ServicesOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • VU
    Vanderbilt University Medical Center
    3× · 2022–2024 · $1.5M · revenue +35%
  • PD
    PHI DELTA THETA FRATERNITY
    3× · 2020–2022 · $455k · revenue +26%
  • EU
    Emory University
    2× · 2023–2024 · $200k · revenue +16%

Funded once

  • TJ
    THOMAS JEFFERSON UNIVERSITYgraduated
    one grant, 2020 · $50k · revenue +45%
  • JOHNS HOPKINS UNIVERSITY
    one grant, 2023 · $25k · revenue +4%
  • MU
    MIAMI UNIVERSITY
    one grant, 2023 · $10k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Philadelphia University

The organization is an affiliate within thomas jefferson university/jefferson health; a comprehensive professional university and tax-exempt integrated healthcare delivery system ("system"), with a tripartite mission of education, research…

Education
2
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
3
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
4
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
5
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
6
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
7
Johns Hopkins Health System Corporation

Johns hopkins health system corporation provides centralized management of a multi-hospital healthcare system. it is a key component of johns hopkins medicine, a collaboration with the johns hopkins university school of medicine.

Health
8
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
9
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
10
Massachusetts Eye & Ear Infirmary

THE MASSACHUSETTS EYE AND EAR INFIRMARY ("THE INFIRMARY") IS A NOT-FOR-PROFIT TEACHING HOSPITAL CONDUCTING PATIENT CARE AND RESEARCH. THE INFIRMARY IS A TEACHING HOSPITAL OF HARVARD MEDICAL SCHOOL AND AN INTERNATIONAL CENTER FOR RESEARCH.…

Health
11
Truman Medical Center Incorporated

University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.

Health
12
Upmc Group

Healthcare, education, and research

—
How this is measured
The grantee most central to the portfolio’s shape is Johns Hopkins University; the most unlike its peers is Hope Loves Company Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

11 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 11 of the 14 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
11/11
Grantees still filing
10/11
Grew since first funded

Where the money sits, by cause and then by grantee

Vanderbilt University Medical Center: $1,460,000 · HealthVanderbilt University Medical CenterBARROW NEUROLOGICAL FOUNDATION: $182,998 · HealthBARROW NEUROLOGICAL FOUNDATIONMAYO CLINIC: $75,000 · HealthPHI DELTA THETA FRATERNITY: $455,076 · OtherPHI DELTA THETA FRATERNITYREGENTS OF THE UNIVERSITY OF MICHIGAN: $259,450 · OtherREGENTS OF THE UNIVERSITY OF…UNIVERSITY OF CALIFORNIA SAN FRANCISCO: $75,000 · OtherUNIVERSITY OF CALIFORNIA SAN…+1 more: $10,000 · OtherEmory University: $200,000 · EducationEmory UniversityUNIVERSITY OF SOUTHERN CALIFORNIA: $150,000 · EducationUNIVERSITY OF SOUTHE…UNIVERSITY OF PITTSBURGH: $150,000 · EducationUNIVERSITY OF PITTSB…THOMAS JEFFERSON UNIVERSITY: $50,000 · EducationTHOMAS JEFFERSON UNI…JOHNS HOPKINS UNIVERSITY: $25,000 · EducationHope Loves Company Inc: $85,000 · Human ServicesPERMOBIL FOUNDATION: $46,000 · Human Services
Health$1,717,998Other$799,526Education$575,000Human Services$131,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetVanderbilt University Medical Center: $1,460,000 over 3y, 0.0% of budgetPHI DELTA THETA FRATERNITY: $455,076 over 3y, 4.9% of budgetEmory University: $200,000 over 2y, 0.0% of budgetBARROW NEUROLOGICAL FOUNDATION: $182,998 over 2y, 0.3% of budgetUNIVERSITY OF SOUTHERN CALIFORNIA: $150,000 over 2y, 0.0% of budgetUNIVERSITY OF PITTSBURGH: $150,000 over 2y, 0.0% of budgetHope Loves Company Inc: $85,000 over 4y, 8.3% of budgetMAYO CLINIC: $75,000 over 1y, 0.0% of budgetTHOMAS JEFFERSON UNIVERSITY: $50,000 over 1y, 0.0% of budgetPERMOBIL FOUNDATION: $46,000 over 3y, 1.7% of budgetJOHNS HOPKINS UNIVERSITY: $25,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization Livelikelou Foundation funds: left to right is the share of its income from government, bottom to top the share from Livelikelou Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 10%1%3%6%10%funder's share of their income ↑0%5%10%15%20%share of the org’s income from government →median 12%
  • Johns Hopkins University: 12% of income from government
no gov moneyreceives it· size = income
1get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–20%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Livelikelou Foundation?

Find your warmest path to Livelikelou Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 14 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Livelikelou’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home