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North Carolina · Public charity

Koolen-De Vries Syndrome Foundation

The KOOLEN-DE VRIES SYNDROME FOUNDATION is an international group that supports, informs, and networks with anyone affected by koolen-de vries syndrome (kdvs) and with any interested professionals. The foundation's activities include social (continued on schedule o) gatherings, patient advocacy summits, supporting research, and providing…

$204k
Granted FY2024(still arriving)
2
Itemized grants FY2024
4
Organizations funded FY2023
Read the full brief
Itemized, FY2024
$45k
The rest is grants the schedule does not break out
Median grant, FY2024
$24,500
Largest grant, FY2024
$24,500
States reached, FY2024
2
Total assets, FY2024
$735k
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2023 to 2024.

Health$204k

Top grantees

Largest recipients by total granted, FY2023 to FY2024, and the share of each one’s budget the grants supplied at peak.

Compare Koolen-De Vries Syndrome Foundation with peer funders

Warm introductions · Powered by PlinthPlus

How do I get to Koolen-De Vries Syndrome Foundation?

Find your warmest path to Koolen-De Vries Syndrome Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

About Koolen-De Vries Syndrome Foundation

How much does Koolen-De Vries Syndrome Foundation give?
Koolen-De Vries Syndrome Foundation reported 2 itemized grants totaling $44,500, out of $204,254 in total grant expense reported on the return in its FY2024 IRS filing.
What does Koolen-De Vries Syndrome Foundation fund?
By grant dollars over FY2023 to FY2024, its largest causes are Health (100%).
Who are Koolen-De Vries Syndrome Foundation's largest grantees?
By total granted over FY2023 to FY2024: Emory University ($58k), Citizens United for Research in Epilepsy ($54k), University of California San Francisco Foundation ($52k).
Where is Koolen-De Vries Syndrome Foundation based?
Koolen-De Vries Syndrome Foundation is based in NC.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 4 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Possibly out of date. A more recent filing (FY2025) is on record and reports no grant expense, so the figures above are from FY2024, the most recent year this funder made grants.

Source object · view filing

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