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· Public charity

Kennedy's Disease Association Inc

To educate, inform, and provide support services regarding kennedy's disease (spinal and bulbar muscular atrophy).

$992k
Granted FY2025still arriving
9
Grants FY2025still arriving
7
States reached
$177k
Largest
01What you fund
0192% classified

What you funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year — across FY20172025.

Science & Tech$820kHealth$404kEducation$383kRecreation & Sports$100kOther$0
02FY2025 · 9 grants

Where the money goes

Your grants by size, and where they go.

The 9 grants below total $726,981 — the rows itemised in this filing. The $991,831 headline is the total grant expense reported on the return, so the remaining $264,850 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.

By grant size · FY2025

  • $10k–50k3 grants · $96k
  • $50k–250k6 grants · $631k
$77,000
Median grant
7
States reached
$532k
Total assets
Largest grants
RecipientAmount
YALE UNIVERSITY$177,000
UNIVERSITY OF MICHIGAN$100,000
UNIVERSITY OF IRVINE$100,000
NORTHWESTERN UNIVERSITY$100,000
CASE WESTERN RESERVE UNIVERSITY$77,000
PHILADELPHIA COLLEGE OF OSTEOPATHIC$77,000
BANBURY CENTER$40,331
THOMAS JEFFERSON UNIVERSITY$37,561
WAYNE STATE UNIVERSITY$18,089
02The need
03

Do your dollars go where the need is?

Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.

show:

Dollar for dollar, your grants (FY18–25) land where the poverty rate runs at 15%, against an area that typically sits at 11%. 62% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.

area typical 11%DR ANDERSON AND DR ZUCCARO: $50k → 11%THOMAS JEFFERSON UNIVERSITY: $100k → 22%REVIR THERAPUTICS INC: $100k → 7%UNIVERSITY OF CALIFORNIA - IRVINE: $77k → 10%BANBURY CENTER: $43k → 7%WAYNE STATE UNIVERSITY: $77k → 21%CASE WESTERN RESERVE UNIVERSITY: $100k → 17%NORTHWESTERN UNIVERSITY: $100k → 14%NIH CLINICAL CENTER: $77k → 8%PENNSYLVANIA COLLEGE OF OSTEOPATHIC: $100k → 22%UNIVERSITY OF IRVINE: $100k → 10%BANBURY CENTER: $40k → 7%WAYNE STATE UNIVERSITY: $18k → 21%CASE WESTERN RESERVE UNIVERSITY: $77k → 17%PHILADELPHIA COLLEGE OF OSTEOPATHIC: $77k → 22%UNIVERSITY OF IRVINE: $50k → 10%BANBURY RESEARCH SBMA WORKSHOP: $30k → 7%CASE WESTERN RESERVE UNIVERSITY: $50k → 17%DR HEATHER MONTIE: $75k → 22%THOMAS JEFFERSON UNIVERSITY: $38k → 22%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount

Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.

Which US states your grants reach

IL
MI
NY
OH
PA
CT
CA
MD

Grants abroad, by region — $252k on the FY2025 return

Schedule F, as filed: 2 regions, $244k to organizations and $8k to individuals. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Region not stated$244k · 97% · 3 grants

Stated purpose: RESEARCH

Europe (including Iceland and Greenland)$8k · 3% · 4 people

Stated purpose: TRAVEL GRANTS

US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.

03Your edge
repeat funding

Who you back again

Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.

37%of every dollar goes to organizations you’ve funded before.
$598k · 4 repeat orgs$1.0M to everyone else

4 repeat relationships — 4 still active in FY2025, 0 since wound down; 4 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

4
11

Total granted

$598k
$719k

Still filing today

75%
0%

New vs renewed · share of each year

In FY2025, 46% of grant dollars renewed an existing relationship; $295k went to new ones.

50%100%’17’18’19’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’22’23’24’25
EducationScience & TechRecreation & SportsOther

First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.

Backed again, and grew

  • CASE WESTERN RESERVE UNIVERSITY
    3× · 2018–2025 · $227k · revenue +44%
  • UO
    UNIVERSITY OF IRVINE
    2× · 2024–2025 · $150k
  • TJ
    THOMAS JEFFERSON UNIVERSITY
    2× · 2023–2025 · $138k · revenue -5%

Funded once

  • PC
    PENNSYLVANIA COLLEGE OF OSTEOPATHIC
    one grant, 2023 · $100k
  • RT
    REVIR THERAPUTICS INC
    one grant, 2024 · $100k
  • WS
    WAYNE STATE UNIVERSITY
    one grant, 2022 · $77k

Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.

04Your field
04the grantee network

6 grantees tracked through their own filings, 2017–2025.

Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.

Counted here: distinct organizations you funded across 20172025, not grant rows in a single year — so this will not match the grant count on the cover. 6 of the 20 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
6/6
Grantees still filing
2/6
Grew since you first funded

Where your money sits — by cause, then by grantee

UNIVERSITY OF IRVINE — $150,000 · OtherUNIVERSITY OF IRVINEPENNSYLVANIA COLLEGE OF OSTEOPATHIC — $100,000 · OtherPENNSYLVANIA COLLEGE OF OSTEOPATHICREGENTS OF THE UNIVERSITY OF MICHIGAN — $100,000 · OtherREGENTS OF THE UNIVERSITY OF MICHIGANREVIR THERAPUTICS INC — $99,500 · OtherREVIR THERAPUTICS INCWAYNE STATE UNIVERSITY — $77,000 · OtherWAYNE STATE UNIVERSITYUNIVERSITY OF CALIFORNIA - IRVINE — $77,000 · OtherUNIVERSITY OF CALIFORNIA - IRVINENIH CLINICAL CENTER — $77,000 · OtherNIH CLINICAL CENTERIndividual grant recipient — $75,000 · OtherIndividual grant recipientDR ANDERSON AND DR ZUCCARO — $50,000 · OtherIndividual grant recipient — $50,000 · OtherIndividual grant recipient — $50,000 · OtherIndividual grant recipient — $33,000 · Other+2 more — $48,492 · OtherCASE WESTERN RESERVE UNIVERSITY — $227,000 · EducationCASE WESTERN RESERVE UNIVERSITYYale University — $177,000 · EducationYale UniversityTHOMAS JEFFERSON UNIVERSITY — $137,561 · EducationTHOMAS JEFFERSON UNIVERSITYPHILADELPHIA COLLEGE OF OSTEOPATHIC MEDICINE — $77,000 · EducationPHILADELPHIA COLLEGE OF OSTEOPATHIC MED…Northwestern University — $100,000 · Recreation & SportsCOLD SPRING HARBOR LABORATORY — $83,606 · Science & Tech
Other$986,992Education$618,561Recreation & Sports$100,000Science & Tech$83,606

Each org by its size and your share of it — top-left is where you’re load-bearing

25%50%75%100%grantee revenue →↑ your share of their budgetCASE WESTERN RESERVE UNIVERSITY — $227,000 over 3y, 0.0% of budgetYale University — $177,000 over 1y, 0.0% of budgetTHOMAS JEFFERSON UNIVERSITY — $137,561 over 2y, 0.0% of budgetCOLD SPRING HARBOR LABORATORY — $83,606 over 2y, 0.0% of budgetPHILADELPHIA COLLEGE OF OSTEOPATHIC MEDICINE — $77,000 over 1y, 0.0% of budget
Go grantee by grantee — a decade per org, and how each moved after you funded them

A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.

  • Who funds CASE WESTERN RESERVE UNIVERSITY
  • Who funds Yale University
  • Who funds THOMAS JEFFERSON UNIVERSITY
  • Who funds Northwestern University
  • Who funds COLD SPRING HARBOR LABORATORY
  • Who funds PHILADELPHIA COLLEGE OF OSTEOPATHIC MEDICINE

Government reliance of your grantees

Every dot is one organization Kennedy's Disease Association Inc funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.

2024
202122232425
no gov · 00%0%1%3%5%your share of their income ↑0%13%25%38%50%share of the org’s income from governmentmedian 12%
  • Yale University12% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–50%
typical government reliance, FY2025

Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.

05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Kennedy's Disease Association Inc?

Find your warmest path to Kennedy's Disease Association Inc through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read directly from IRS e-file XML — your own 990/990-PF and the multi-year returns of the 20 grantees we resolved across every year we hold, several hundred filings in all (a different count from the grant rows on the cover, which are one fiscal year)— each linked to its source. Grantee achievements and outcomes are each organization’s own program-service reporting (Form 990, Part III); we read these as association with sustained funding — the foundation is one of several forces — suppress low-confidence name matches rather than guess, and say so where a figure rests on a single grant or filing. Not everything on this page is a filed figure, and the difference matters. Filed is what you reported on your return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears. How we build these →

Generated from your IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12–24 months behind; figures are dated accordingly.

Source object · view filing

More from the funding graph