· Public charity
Hereditary Neuropathy Foundation Inc
Hnf, inc., a non-profit dedicated to supporting projects through the therapeutic research in accelerated discovery (triad)program, a collaborative effort with academia, government and industry, to develop treatments for cmt.
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.
Where the money goes
Grants by size, and the largest recipients.
How this is measured
By grant size · FY2025
- $10k–50k2 grants · $46k
- $50k–250k1 grant · $128k
| Recipient | Amount |
|---|---|
| BURKE NEUROLOGICAL INSTITUTE | $128,117 |
| INOTIV INC | $26,491 |
| ACROSS HEALTHCARE | $20,000 |
Does the money reach high-need areas?
Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.
Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 11%, against an area that typically sits at 10%. 57% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.
How this is measured
Which US states its grants reach
Grants abroad, by region: $140k on the FY2025 return
Schedule F, as filed: 3 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: TO ESTABLISH, MAINTAIN, AND PROMOTE CLINICAL TRIAL READINESS FO CHARCOT-MARIE-TOOTH DISEASE AND RELATED NEUROPATHIES. THE STUDY HAS MILESTONES THAT MUST BE MET FOR RESEARCH PURPOSES. THESE MILESTONES HELP ENSURE THE DONATED FUNDS ARE BEING SPENT APPROPRIATELY.
Stated purpose: TO SUPPORT THE PROJECT LOOKING AT COMPARISON OF HUMAN AND MOUSE NEURONS WITH MTRFR. THE PROJECT HAS MILESTONES AND METRICS THAT MUST BE MET FOR RESEARCH PURPOSES. THESE MILESTONES AND METRICS HELP ENSURE THE DONATED FUNDS ARE BEING SPENT APPROPRIATELY. · TO SUPPORT A RESEARCH PROJECT TO BETTER UNDERSTAND THE FUNCTIONAL PARAMAETERS THAT ARE CRITICAL IN GUIDING EFFECTIVE THEREAPEUTIC INTERVENTIONS OF MTRFR DEFICIENCY. THE RESEARCH PROJECT REQUIRES PROGRESS REPORTS THAT MUST SUBMITTED EVERY THREE MONTHS. THESE REPORTS HELP ENSURE THE DONATED FUNDS ARE BEING SPENT APPROPRIATELY.
Stated purpose: TO CONDUCT A STUDY IN MICE TO EVALUATE THE EFFECT OF TEST COMPOUNDS ON THE MODULATION OF TARGET GENE EXPRESSION IN BRAIN TISSUE. THE STUDY HAS MILESTONES THAT MUST BE MET FOR RESEARCH PURPOSES. THESE MILESTONES HELP ENSURE THE DONATED FUNDS ARE BEING SPENT APPROPRIATELY.
How this is measured
Who it funds again
Organizations funded in more than one year, against those funded once.
9 repeat relationships: 2 still active in FY2025, 7 since wound down; 1 grantees were first funded in FY2025 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 85% of grant dollars renewed an existing relationship; $26k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
Backed again, and grew
- WMWinifred Masterson Burke Medical Research2× · 2022–2025 · $138k · revenue +36%
- TGTHE GENESIS PROJECT INC4× · 2019–2022 · $115k · revenue +78%
- UOUniversity of Miami3× · 2021–2023 · $75k · revenue +48%
Funded once
- UOUNIVERSITY OF NORTH CAROLINA AT CHAPEL HILLone grant, 2017 · $15k
- PAPROHEALTH AND FITNESSone grant, 2019 · $10k
- ARANN & ROBERT H LURIE CHILDREN'S HOSPITALone grant, 2024 · $10k
How this is measured
Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.
5 grantees tracked through their own filings, 2017–2025.
Each grant beside the grantee’s revenue from every source, year by year.
How this is measured
Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 5 of the 16 grantees resolved in that span have returns of their own we could reconcile.
Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.
Where the money sits, by cause and then by grantee
Each grantee by its size and the funder’s share of it; top left is load-bearing
Grantee by grantee: a decade per organization, before and after funding
A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.
How much its grantees rely on government
Each dot is one organization Hereditary Neuropathy Foundation Inc funds: left to right is the share of its income from government, bottom to top the share from Hereditary Neuropathy Foundation Inc. Bigger dots raise more.
- University of Miami: 5% of income from government
How this is measured
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