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Maryland · Public charity

Ehlers-Danlos Research Foundation Inc

Promote and increase research of the ehlers-danlos syndromes

$297k
Granted FY2025(still arriving)
1
Grants FY2025
1
Organizations funded FY2024
0%
First-time grantees FY2024
Read the full brief
Median grant, FY2025
$297,267
Largest grant, FY2025
$297,267
Organizations funded a year
1 to 2
FY2023 to FY2024
States reached, FY2025
1

How open it is to new grantees

In FY2024, 0% of the organizations Ehlers-Danlos Research Foundation Inc funded were first-time grantees, receiving 0% of its grant dollars.

The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2025still arriving1$297k100%
FY20241$99k0%
FY20232$152kn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2023 to 2025.

Health$549k

Top grantees

Largest recipients by total granted, FY2023 to FY2025, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
Ehlers-Danlos Society$297,26713%
Hugo W Moser Research Institute at Kennedy Krieger Inc$198,98720%
Indiana University School of Medicine$52,5001n/a

Compare Ehlers-Danlos Research Foundation Inc with peer funders

Warm introductions · Powered by PlinthPlus

How do I get to Ehlers-Danlos Research Foundation Inc?

Find your warmest path to Ehlers-Danlos Research Foundation Inc through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

About Ehlers-Danlos Research Foundation Inc

How much does Ehlers-Danlos Research Foundation Inc give?
Ehlers-Danlos Research Foundation Inc reported 1 grants totaling $297,267 in its FY2025 IRS filing. It funded between 1 and 2 organizations a year over FY2023 to FY2024.
What does Ehlers-Danlos Research Foundation Inc fund?
By grant dollars over FY2023 to FY2025, its largest causes are Health (100%).
Who are Ehlers-Danlos Research Foundation Inc's largest grantees?
By total granted over FY2023 to FY2025: Ehlers-Danlos Society ($297k), Hugo W Moser Research Institute at Kennedy Krieger Inc ($199k), Indiana University School of Medicine ($53k).
Does Ehlers-Danlos Research Foundation Inc fund new organizations?
In FY2024, 0% of the organizations it funded were first-time grantees.
Where is Ehlers-Danlos Research Foundation Inc based?
Ehlers-Danlos Research Foundation Inc is based in MD.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 3 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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