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New York · Public charity

Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation

The dysautonomia foundation supports and operates programs focused on the medical care, research, social services, and public education for the benefit of people affected by or at risk for familial dysautonomia fd.

$1.2M
Granted FY2024(still arriving)
3
Grants FY2024
3
Organizations funded FY2023
0%
First-time grantees FY2023
Read the full brief
Median grant, FY2024
$96,274
Largest grant, FY2024
$1,116,206
Organizations funded a year
2 to 6
FY2017 to FY2023
States reached, FY2024
2
Total assets, FY2024
$1.1M

How open it is to new grantees

In FY2023, 0% of the organizations Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation funded were first-time grantees, receiving 0% of its grant dollars.

New vs renewed · share of each year

In FY2023, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’18’19’20’21’22’23
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23
InternationalOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2024still arriving3$1.2M0%
FY20233$1.2M0%
FY20223$1.1M0%
FY20212$1.2M0%
FY20202$1.2M0%
FY20193$1.2M67%
FY20183$1.1M0%
FY20176$1.7Mn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$9.9MInternational$58kEducation$10k

Top grantees

Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
New York University$9,062,98680%
Autonomic Research LLC$515,1596n/a
Montana State University$155,7164n/a
The University of Tennessee$75,0002n/a
Visio-D Consultants LLC$58,0132n/a
American Friends of Tel Aviv Univ$57,60010%
Mass General Brigham Incorporated$51,4401n/a
Emory University$10,43010%

Compare Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation with peer funders

About Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation

How much does Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation give?
Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation reported 3 grants totaling $1,246,894 in its FY2024 IRS filing. It funded between 2 and 6 organizations a year over FY2017 to FY2023.
What does Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation fund?
By grant dollars over FY2017 to FY2024, its largest causes are Health (99%), International (1%), Education (0%).
Who are Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation's largest grantees?
By total granted over FY2017 to FY2024: New York University ($9.1M), Autonomic Research LLC ($515k), Montana State University ($156k).
Does Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation fund new organizations?
In FY2023, 0% of the organizations it funded were first-time grantees.
Where is Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation based?
Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation is based in NY.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 8 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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