North Carolina · Public charity
Dup 15q Alliance
Dup15q alliance empowers individuals living with dup15q syndrome and other related rare diseases to reach their full potential by advancing breakthrough research and life-changing therapeutic treatments, supporting families affected by dup15q, and promoting advocacy. As the only patient advocacy grup focused on duplication 15q syndrome,…
- $603k
- Granted FY2025(still arriving)
- 2
- Grants FY2025
- 4
- Organizations funded FY2024
- 50%
- First-time grantees FY2024
- Median grant, FY2025
- $500,000
- Largest grant, FY2025
- $500,000
- Organizations funded a year
- 2 to 4
- FY2018 to FY2024
- States reached, FY2025
- 2
- Total assets, FY2025
- $6.4M
How open it is to new grantees
In FY2024, 50% of the organizations Dup 15q Alliance funded were first-time grantees, receiving 20% of its grant dollars.
New vs renewed · share of each year
In FY2024, 80% of grant dollars renewed an existing relationship; $75k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 2 | $600k | 100% |
| FY2024 | 4 | $371k | 50% |
| FY2023 | 3 | $247k | 33% |
| FY2022 | 3 | $134k | 33% |
| FY2021 | 3 | $269k | 33% |
| FY2020 | 2 | $75k | 50% |
| FY2019 | 3 | $95k | 67% |
| FY2018 | 3 | $70k | 67% |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Angelman Syndrome Foundation Inc | $204,000 | 4 | 3% |
| University of North Carolina at Chapel Hill | $150,000 | 4 | n/a |
| Quiver Biosciences | $100,000 | 1 | n/a |
| The University of Tennessee | $70,250 | 2 | n/a |
| Regents of the University of California | $50,000 | 2 | n/a |
| Children's Hospital Los Angeles | $50,000 | 1 | 0% |
| Cornell University | $25,000 | 1 | 0% |
| University of Connecticut | $24,745 | 1 | n/a |
| Citizens United for Research in Epilepsy | $24,040 | 1 | 0% |
| Mass General Brigham Incorporated | $20,000 | 1 | n/a |
Show all 11 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Angelman Syndrome Foundation Inc | $204,000 | 4 | 3% |
| University of North Carolina at Chapel Hill | $150,000 | 4 | n/a |
| Quiver Biosciences | $100,000 | 1 | n/a |
| The University of Tennessee | $70,250 | 2 | n/a |
| Regents of the University of California | $50,000 | 2 | n/a |
| Children's Hospital Los Angeles | $50,000 | 1 | 0% |
| Cornell University | $25,000 | 1 | 0% |
| University of Connecticut | $24,745 | 1 | n/a |
| Citizens United for Research in Epilepsy | $24,040 | 1 | 0% |
| Mass General Brigham Incorporated | $20,000 | 1 | n/a |
| Illuminostics LLC | $14,880 | 1 | n/a |
Plus 3 recipients with no EIN on record ($1.2M), not named here.
About Dup 15q Alliance
- How much does Dup 15q Alliance give?
- Dup 15q Alliance reported 2 grants totaling $602,500 in its FY2025 IRS filing. It funded between 2 and 4 organizations a year over FY2018 to FY2024.
- What does Dup 15q Alliance fund?
- By grant dollars over FY2017 to FY2025, its largest causes are Science & Tech (57%), Health (25%), Education (6%).
- Who are Dup 15q Alliance's largest grantees?
- By total granted over FY2017 to FY2025: Angelman Syndrome Foundation Inc ($204k), University of North Carolina at Chapel Hill ($150k), Quiver Biosciences ($100k).
- Does Dup 15q Alliance fund new organizations?
- In FY2024, 50% of the organizations it funded were first-time grantees.
- Where is Dup 15q Alliance based?
- Dup 15q Alliance is based in NC.
Play a game based on Dup 15q Alliance’s filings →