New Jersey · Public charity
Dravet Syndrome Foundation Inc
The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families. We understand the ongoing need to fund innovative research, the urgency in finding better treatments, the motivation of…
- $3.3M
- Granted FY2025(still arriving)
- 9
- Itemized grants FY2025
- 4
- Organizations funded FY2024
- 25%
- First-time grantees FY2024
- Itemized, FY2025
- $2.7M
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $240,000
- Largest grant, FY2025
- $779,250
- Organizations funded a year
- 2 to 6
- FY2019 to FY2024
- States reached, FY2025
- 8
- Total assets, FY2025
- $9.8M
How open it is to new grantees
In FY2024, 25% of the organizations Dravet Syndrome Foundation Inc funded were first-time grantees, receiving 1% of its grant dollars.
New vs renewed · share of each year
In FY2024, 99% of grant dollars renewed an existing relationship; $13k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 8 | $2.4M | 38% |
| FY2024 | 4 | $1.7M | 25% |
| FY2023 | 5 | $771k | 60% |
| FY2022 | 4 | $500k | 75% |
| FY2021 | 2 | $240k | 100% |
| FY2020 | 2 | $160k | 50% |
| FY2019 | 6 | $576k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2019 to 2025.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2019 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Regents of the University of Michigan | $1,404,250 | 3 | n/a |
| The Children's Hospital of Philadelphia | $1,389,900 | 3 | 0% |
| Regents of the University of Colorado | $937,231 | 4 | n/a |
| Allen Institute | $449,785 | 1 | n/a |
| Northwestern University | $315,000 | 2 | 0% |
| The Research Foundation for The State University of New York | $250,000 | 2 | 0% |
| University of Utah | $239,671 | 2 | n/a |
| Case Western Reserve University | $216,166 | 1 | 0% |
| University of Texas | $215,000 | 2 | n/a |
| Vanderbilt University Medical Center | $165,000 | 1 | 0% |
Show all 19 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Regents of the University of Michigan | $1,404,250 | 3 | n/a |
| The Children's Hospital of Philadelphia | $1,389,900 | 3 | 0% |
| Regents of the University of Colorado | $937,231 | 4 | n/a |
| Allen Institute | $449,785 | 1 | n/a |
| Northwestern University | $315,000 | 2 | 0% |
| The Research Foundation for The State University of New York | $250,000 | 2 | 0% |
| University of Utah | $239,671 | 2 | n/a |
| Case Western Reserve University | $216,166 | 1 | 0% |
| University of Texas | $215,000 | 2 | n/a |
| Vanderbilt University Medical Center | $165,000 | 1 | 0% |
| Virginia Polytechnic Institute & State University | $150,000 | 1 | n/a |
| The Ohio State University | $150,000 | 1 | n/a |
| Washington University | $150,000 | 1 | 0% |
| Children's Research Institute | $150,000 | 1 | 0% |
| The Broad Institute Inc | $100,000 | 1 | 0% |
| Children's Hospital Corporation | $77,500 | 1 | 0% |
| Coriell Institute for Medical Research Inc | $21,986 | 2 | 0% |
| Ann & Robert H Lurie Children's Hospital of Chicago | $11,000 | 1 | 0% |
| The Boggy Creek Gang Inc | $10,000 | 1 | 0% |
Where it is load-bearing
Each grantee by its size and the share of its budget Dravet Syndrome Foundation Inc supplied at peak.
Tap a dot to name the grantee.
How this is measured
Warm introductions · Powered by PlinthPlus
How do I get to Dravet Syndrome Foundation Inc?
Find your warmest path to Dravet Syndrome Foundation Inc through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
About Dravet Syndrome Foundation Inc
- How much does Dravet Syndrome Foundation Inc give?
- Dravet Syndrome Foundation Inc reported 9 itemized grants totaling $2,727,635, out of $3,290,753 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 2 and 6 organizations a year over FY2019 to FY2024.
- What does Dravet Syndrome Foundation Inc fund?
- By grant dollars over FY2019 to FY2025, its largest causes are Health (94%), Science & Tech (6%).
- Who are Dravet Syndrome Foundation Inc's largest grantees?
- By total granted over FY2019 to FY2025: Regents of the University of Michigan ($1.4M), The Children's Hospital of Philadelphia ($1.4M), Regents of the University of Colorado ($937k).
- Does Dravet Syndrome Foundation Inc fund new organizations?
- In FY2024, 25% of the organizations it funded were first-time grantees.
- Where is Dravet Syndrome Foundation Inc based?
- Dravet Syndrome Foundation Inc is based in NJ.
Play a game based on Dravet Syndrome’s filings →