· Public charity
Dravet Syndrome Foundation Inc
The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2019–2025.
Where the money goes
Your grants by size, and where they go.
The 9 grants below total $2,727,635 — the rows itemised in this filing. The $3,290,753 headline is the total grant expense reported on the return, so the remaining $563,118 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2025
- Under $10k1 grant · $9k
- $50k–250k4 grants · $518k
- $250k+4 grants · $2.2M
| Recipient | Amount |
|---|---|
| Regents of the University of Michigan | $779,250 |
| Regents of the University of Colorado | $662,231 |
| Allen Institute | $449,785 |
| The Board of Trustees of the Leland Stanford Junior University | $309,500 |
| Children's Hospital of Pennsylvania | $240,000 |
| The Research Foundation for the State University of New York | $100,000 |
| The Broad Institute of MIT and Harvard | $100,000 |
| The Children's Hospital Corporation dba Boston Children's Hospital | $77,500 |
| Coriell Institute for Medical Research | $9,369 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY19–25) land where the poverty rate runs at 14%, against an area that typically sits at 10%. 84% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
Grants abroad, by region — $485k on the FY2025 return
Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: 1. Leiden University Medical Center - Research Grant: Neurophysiological Characterization of the Therapeutic Effect of Exogenous Nav1.1 Channels - $110,000. 2.Royal College of Surgeons Ireland - Postdoctoral Fellowship: Multi-Target Strategy for Dravet Syndrome: Enhancing Sodium Channels and GABA Receptors via miRNA Inhibition - $75,000. 3. Institut de Génétique Moléculaire de Montpellier, in conjunction with Tel Aviv University and The Children's Hospital of Philadelphia - Transformational Science Grant: Molecular Characterization of the Therapeutic Effect of Exogenous Nav1.1 - $170,000. Details for each of these projects can be found at https://dravetfoundation.org/dsf-funded-research/
Stated purpose: Tel Aviv University in conjunction with Institut de Génétique Moléculaire de Montpellier and The Children's Hospital of Philadelphia - Transformational Science Grant: Molecular Characterization of the Therapeutic Effect of Exogenous Nav1.1. This study investigates how introducing functional Nav1.1 sodium channels affects cellular and molecular processes. The goal is to better understand how restoring this protein alters neuronal signaling, protein interactions, and downstream pathways. By mapping these effects, researchers aim to identify mechanisms of therapeutic benefit and potential biomarkers of response. Insights from this work will guide optimization of Nav1.1-based therapies and support the development of more targeted and effective treatment strategies.
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
Where the work is directed
The same grants, placed two ways — where each recipient sits, and where its stated purpose earmarks the money.
About 19% of Dravet Syndrome Foundation Inc’s grant dollars are earmarked, by their stated purpose, for a different county than the recipient’s own address — money that lands at a nonprofit in one place but is meant to do its work in another.
Recipient view: each grant at its grantee’s ZIP, mapped to a county. Directed view: each grant at the county its stated purpose names, falling back to the recipient’s county when the purpose names no place; US grants only. A county shows only if it carries the top 95% of that view’s dollars. Purposes are read from the foundation’s own 990 grant descriptions.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
8 repeat relationships — 5 still active in FY2025, 3 since wound down; 3 grantees were first funded in FY2025 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 74% of grant dollars renewed an existing relationship; $627k went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- TCTHE CHILDREN'S HOSPITAL OF PHILADELPHIA3× · 2021–2025 · $1.4M · revenue +45%
Northwestern University2× · 2019–2020 · $315k · revenue +34%- TRThe Research Foundation for The State University of New York2× · 2023–2025 · $250k · revenue +33%
Funded once
CASE WESTERN RESERVE UNIVERSITYone grant, 2023 · $216k · revenue +14%- VUVanderbilt University Medical Centergraduatedone grant, 2023 · $165k · revenue +25%
WASHINGTON UNIVERSITYone grant, 2022 · $150k · revenue +6%
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.
The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o
See Form 990, Part I, Line 1, Description of Organization Mission.
The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…
We educate the next generation of leaders to improve the health of our society.
The hugo w. moser research institute at kennedy krieger, inc. (the "research institute") is an internationally recognized research facility finding answers to problems and injuries that affect a child's developing brain. researchers have…
Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.
As a leading academic healthcare organization, our mission is to elevate the health status of the communities we serve.(see schedule o for continuation)(continued)-we deliver exceptional healthcare enhanced by research and education-we…
For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…
As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…
For reference, the grantee most central to the portfolio’s shape is Brown University and the most unlike its peers is The Boggy Creek Gang Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
16 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 16 of the 22 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
- Who funds ALLEN INSTITUTE ↗
- Who funds Northwestern University ↗
- Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
- Who funds The Research Foundation for The State University of New York ↗
- Who funds BROWN UNIVERSITY ↗
- Who funds CASE WESTERN RESERVE UNIVERSITY ↗
- Who funds Vanderbilt University Medical Center ↗
- Who funds WASHINGTON UNIVERSITY ↗
- Who funds CHILDREN'S RESEARCH INSTITUTE ↗
- Who funds The Broad Institute Inc ↗
- Who funds Children's Hospital Corporation ↗
- Who funds CORIELL INSTITUTE FOR MEDICAL RESEARCH INC ↗
- Who funds MAYO CLINIC ↗
- Who funds Ann & Robert H Lurie Children's Hospital of Chicago ↗
- Who funds THE BOGGY CREEK GANG INC ↗
Government reliance of your grantees
Every dot is one organization Dravet Syndrome Foundation Inc funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.
- Coriell Institute for Medical Research Inc — 44% of income from government
- The Broad Institute Inc — 19% of income from government
- Children's Hospital Corporation — 10% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.
Warm introductions · Powered by PlinthPlus
How do I get to Dravet Syndrome Foundation Inc?
Find your warmest path to Dravet Syndrome Foundation Inc through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.