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New York · Public charity

Diamond Blackfan Anemia Foundation

The mission of the DIAMOND BLACKFAN ANEMIA FOUNDATION is to advance research initiatives that promote a better understanding, therapeutic strategies and a cure for this rare bone marrow failure syndrome. We are dedicated to providing patient advocacy, support and education services to individuals, families and medical professionals…

$199k
Granted FY2025(still arriving)
3
Itemized grants FY2025
3
Organizations funded FY2023
33%
First-time grantees FY2023
Read the full brief
Itemized, FY2025
$120k
The rest is grants the schedule does not break out
Median grant, FY2025
$50,000
Largest grant, FY2025
$60,000
Organizations funded a year
2 to 3
FY2020 to FY2023
States reached, FY2025
3
Total assets, FY2025
$1.9M

How open it is to new grantees

In FY2023, 33% of the organizations Diamond Blackfan Anemia Foundation funded were first-time grantees, receiving 19% of its grant dollars.

New vs renewed · share of each year

In FY2023, 81% of grant dollars renewed an existing relationship; $67k went to new ones.

50%100%’21’23
RenewedFirst-time
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2025still arriving3$120k100%
FY20233$346k33%
FY20212$70k100%
FY20202$128kn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2020 to 2024.

Health$529kEducation$120kScience & Tech$15k

Top grantees

Largest recipients by total granted, FY2020 to FY2025, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
Children's Hospital Corporation$218,40820%
St Jude Children's Research Hospital Inc$130,00020%
The Feinstein Institutes for Medical Research$113,00010%
Joslin Diabetes Center Inc$67,31410%
Regents of the University of Michigan$60,0001n/a
Regents of the University of California at San Diego$50,0001n/a
University of Louisville Foundation Inc$15,00010%
Camp Sunshine at Sebago Lake Inc$10,0001n/a

Compare Diamond Blackfan Anemia Foundation with peer funders

Warm introductions · Powered by PlinthPlus

How do I get to Diamond Blackfan Anemia Foundation?

Find your warmest path to Diamond Blackfan Anemia Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

About Diamond Blackfan Anemia Foundation

How much does Diamond Blackfan Anemia Foundation give?
Diamond Blackfan Anemia Foundation reported 3 itemized grants totaling $120,000, out of $199,000 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 2 and 3 organizations a year over FY2020 to FY2023.
What does Diamond Blackfan Anemia Foundation fund?
By grant dollars over FY2020 to FY2025, its largest causes are Health (80%), Education (18%), Science & Tech (2%).
Who are Diamond Blackfan Anemia Foundation's largest grantees?
By total granted over FY2020 to FY2025: Children's Hospital Corporation ($218k), St Jude Children's Research Hospital Inc ($130k), The Feinstein Institutes for Medical Research ($113k).
Does Diamond Blackfan Anemia Foundation fund new organizations?
In FY2023, 33% of the organizations it funded were first-time grantees.
Where is Diamond Blackfan Anemia Foundation based?
Diamond Blackfan Anemia Foundation is based in NY.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 9 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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