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Cystic Fibrosis Research Fund Inc at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Cystic Fibrosis Research Fund Inc

The organization accelerates research and drug development for the final 10 of the cystic fibrosis community that do not benefit from the currently available mutation-targeted therapies.

$1.3M
Granted FY2025still arriving
10
Grants FY2025still arriving
8
States reached
$248k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Education$3.4MHealth$3.0MScience & Tech$420k
02FY2025 · 10 grants

Where the money goes

Grants by size, and the largest recipients.

$110,000
Median grant
8
States reached
$5.6M
Total assets
Largest grants
RecipientAmount
University of California San Diego$247,500
University of Massachusetts$220,000
Childrens Hospital of Philadelphia Research Institute$183,138
University of IA$160,628
San Diego State University$110,000
The University of Texas at Austin$99,407
University of Rochester$84,922
Regents of the University of Michigan$55,000
Case Western Reserve University$55,000
Trustees of Boston University$55,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 15%, against an area that typically sits at 10%. 100% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%University of Massachusetts: $220k → 12%Trustees of Boston University: $110k → 16%University of Pittsburgh: $110k → 11%TALEE BIO: $385k → 22%UNIVERSITY OF CALIFORNIA SAN FRANCISCO: $150k → 10%San Diego State University: $110k → 11%University of Rochester: $85k → 14%THE ROCKEFELLER UNIVERSITY: $110k → 17%THE UNIVERSITY OF TEXAS AT AUSTIN: $165k → 10%STATE UNIVERSITY OF IOWA -MITOCHON: $399k → 15%Regents of the University of Michigan: $110k → 14%YALE UNIVERSITY: $141k → 12%UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL: $275k → 13%Case Western Reserve University: $110k → 17%UNIVERSITY OF ILLINOIS AT URBANA-CHAMPAIGN: $110k → 19%Trustees of Boston University: $55k → 16%University of Pittsburgh: $55k → 11%Childrens Hospital of Philadelphia Research Institute: $185k → 22%UNIVERSITY OF CALIFORNIA SAN FRANCISCO: $75k → 10%University of CA San Diego: $498k → 11%University of Rochester: $85k → 14%ROCKEFELLER UNIVERSITY: $55k → 17%The University of Texas at Austin: $99k → 10%UNIVERSITY OF IOWA: $206k → 15%Regents of the University of Michigan: $55k → 14%YALE UNIVERSITY: $75k → 12%UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL: $138k → 13%CASE WESTERN UNIVERSITY: $110k → 17%UNIVERSITY OF ILLINOIS AT URBANA-CHAMPAIGN: $55k → 19%UNIVERSITY OF PITTSBURG: $55k → 11%Childrens Hospital of Philadelphia Research Institute: $183k → 22%UNIVERSITY OF CALIFORNIA SAN FRANCISCO: $83k → 10%University of California San Diego: $248k → 11%THE ROCKEFELLER UNIVERSITY: $55k → 17%The University of Texas at Austin: $55k → 10%University of IA: $165k → 15%Regents of the University of Michigan: $55k → 14%UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL: $69k → 13%Case Western Reserve University: $55k → 17%UNIVERSITY OF ILLINOIS AT URBANA-CHAMPAIGN: $55k → 19%THE WISTAR INSTITUTE: $110k → 22%UNIVERSITY OF CALIFORNIA SAN FRANCISCO: $75k → 10%REGENTS OF THE UNIVERSITY OF CALIFO: $165k → 11%University of IA: $161k → 15%CASE WESTERN RESERVE UNIVERSITY: $55k → 17%REGENTS OF THE UNIVERSITY OF CALIFO: $83k → 11%University of IA: $80k → 15%UNIVERSITY OF IOWA: $69k → 15%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

IL
MI
NY
MA
IA
OH
PA
CT
CA
NC
AL
GA
TX
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

78%of every dollar goes to organizations it has funded before.
$5.3M · 18 repeat orgs$1.5M to everyone else

18 repeat relationships: 7 still active in FY2025, 11 since wound down; 3 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

18
3

Total granted

$5.3M
$903k

Median revenue growth · since first grant

+11%
+26%

Still filing today

39%
33%

New vs renewed · share of each year

In FY2025, 55% of grant dollars renewed an existing relationship; $578k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
EducationHealthScience & TechOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • TC
    THE CHILDREN'S HOSPITAL OF PHILADELPHIA
    2× · 2024–2025 · $368k · revenue +8%
  • CASE WESTERN RESERVE UNIVERSITY
    4× · 2021–2025 · $275k · revenue +34%
  • TW
    THE WISTAR INSTITUTE OF ANATOMY AND BIOLOGY
    3× · 2020–2022 · $220k · revenue +39%

Funded once

  • RO
    REGENTS OF THE UNIVERSITY OF CALIFORNIA
    one grant, 2024 · $498k
  • TB
    TALEE BIO
    one grant, 2017 · $385k
  • CS
    COLD SPRING HARBOR LABORATORYgraduated
    one grant, 2020 · $20k · revenue +26%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
2
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
3
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
4
Trustees of the University of Pennsylvania

The trustees of the university of pennsylvania (the "university") sees itself as having a public service mission. in such regard, the university aims to provide a rich and diverse educational environment for its students; to pioneer…

Education
5
Cornell University

Education, research, medical services and other public services.

Education
6
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
7
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
8
The Trustees of Princeton University

Research, education and general - princeton university is a private not-for-profit, non-sectarian institution of higher learning with approximately 5,700 undergraduate and 3,300 graduate students. 2,500 students graduated in the 2024-2025…

Education
9
Massachusetts Institute of Technology

The mission of mit is to advance knowledge and educate students in science, technology, and other areas of scholarship that will best serve the nation and the world in the 21st century.

Education
10
Lehigh University

The university's goal in the coming decade is to advance learning through the integration of teaching, research and service to others. the core of this goal is to prepare graduates to engage with the world and lead lives of meaning. to do…

Education
11
Western New England University

Western new england university, a comprehensive private institution with a tradition of excellence in teaching and scholarship and a commitment to service, awards undergraduate, master's, and doctoral degrees in various departments from…

Education
12
The Central European University

Ceu is committed to promoting the values of open society and self-reflective critical thinking. it aims at excellence in the mastery of established knowledge, courage to pursue the creation of new knowledge in the humanities, the social…

International
How this is measured
The grantee most central to the portfolio’s shape is The Rockefeller University; the most unlike its peers is The Children's Hospital of Philadelphia. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

9 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 9 of the 25 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
9/9
Grantees still filing
9/9
Grew since first funded

Where the money sits, by cause and then by grantee

State University of Iowa: $1,081,049 · OtherState University of IowaREGENTS OF THE UNIVERSITY OF CALIFORNIA: $497,500 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIAUNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL: $481,250 · OtherUNIVERSITY OF NORTH CAROLINA AT CHAPEL HILLTALEE BIO: $385,457 · OtherTALEE BIOUNIVERSITY OF CALIFORNIA SAN FRANCISCO: $382,500 · OtherUNIVERSITY OF CALIFORNIA SAN FRANCISCOUNIVERSITY OF TEXAS: $319,407 · OtherUNIVERSITY OF TEXASUniversity of California San Diego: $247,500 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO: $247,500 · OtherTHE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS: $220,000 · OtherUNIVERSITY OF ALABAMA AT BIRMINGHAM: $220,000 · OtherUNIVERSITY OF MASSACHUSETTS: $220,000 · OtherREGENTS OF THE UNIVERSITY OF MICHIGAN: $220,000 · OtherYALE UNIVERSITY: $216,250 · Other+4 more: $542,171 · Other+4 moreCASE WESTERN RESERVE UNIVERSITY: $275,000 · EducationCASE WESTERN RES…THE ROCKEFELLER UNIVERSITY: $220,000 · EducationTHE ROCKEFELLER …UNIVERSITY OF PITTSBURGH: $220,000 · EducationUNIVERSITY OF PI…UNIVERSITY OF ROCHESTER: $199,492 · EducationUNIVERSITY OF RO…Yale University: $68,750 · EducationYale UniversityTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $368,276 · HealthTHE CHILD…THE WISTAR INSTITUTE OF ANATOMY AND BIOLOGY: $220,000 · HealthTHE WISTA…COLD SPRING HARBOR LABORATORY: $20,000 · Science & Tech
Other$5,280,584Education$983,242Health$588,276Science & Tech$20,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%grantee revenue →↑ funder's share of their budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $368,276 over 2y, 0.0% of budgetCASE WESTERN RESERVE UNIVERSITY: $275,000 over 4y, 0.0% of budgetTHE WISTAR INSTITUTE OF ANATOMY AND BIOLOGY: $220,000 over 3y, 0.1% of budgetTHE ROCKEFELLER UNIVERSITY: $220,000 over 3y, 0.0% of budgetUNIVERSITY OF PITTSBURGH: $220,000 over 3y, 0.0% of budgetUNIVERSITY OF ROCHESTER: $199,492 over 3y, 0.0% of budgetTRUSTEES OF BOSTON UNIVERSITY: $165,000 over 2y, 0.0% of budgetYale University: $68,750 over 1y, 0.0% of budgetCOLD SPRING HARBOR LABORATORY: $20,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
  • Who funds CASE WESTERN RESERVE UNIVERSITY ↗
  • Who funds THE WISTAR INSTITUTE OF ANATOMY AND BIOLOGY ↗
  • Who funds THE ROCKEFELLER UNIVERSITY ↗
  • Who funds UNIVERSITY OF PITTSBURGH ↗
  • Who funds UNIVERSITY OF ROCHESTER ↗
  • Who funds TRUSTEES OF BOSTON UNIVERSITY ↗
  • Who funds Yale University ↗
  • Who funds COLD SPRING HARBOR LABORATORY ↗

How much its grantees rely on government

Each dot is one organization Cystic Fibrosis Research Fund Inc funds: left to right is the share of its income from government, bottom to top the share from Cystic Fibrosis Research Fund Inc. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%19%38%56%75%share of the org’s income from government →median 12%
  • Trustees of Boston University: 12% of income from government
  • Yale University: 12% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–75%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Cystic Fibrosis Research Fund Inc?

Find your warmest path to Cystic Fibrosis Research Fund Inc through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 25 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Cystic Fibrosis Research’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home