· Public charity
Cure KCNH1 Foundation
Our mission is to urgently improve the lives of individuals and families affected by KCNH1-Related Disorders by accelerating research toward the development of effective treatments and a cure building connections within the KCNH1 patient and professional community raising awareness about KCNH1-related disorders and advocating for the…
Where the money goes
Grants by size, and the largest recipients.
By grant size · FY2025
- $10k–50k3 grants · $68k
- $50k–250k1 grant · $100k
| Recipient | Amount |
|---|---|
| Northwestern University | $100,000 |
| Northwestern University | $30,000 |
| Northwestern University | $20,000 |
| N-Lorem Foundation | $18,400 |
Does the money reach high-need areas?
Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.
Dollar for dollar, its grants (FY25–25) land where the poverty rate runs at 13%, against an area that typically sits at 10%. 100% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.
How this is measured
How this is measured
2 grantees tracked through their own filings, 2017–2025.
Each grant beside the grantee’s revenue from every source, year by year.
How this is measured
Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover.
Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.
Each grantee by its size and the funder’s share of it; top left is load-bearing
Grantee by grantee: a decade per organization, before and after funding
A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.
How much its grantees rely on government
Each dot is one organization Cure KCNH1 Foundation funds: left to right is the share of its income from government, bottom to top the share from Cure KCNH1 Foundation. Bigger dots raise more.
How this is measured
Warm introductions · Powered by PlinthPlus
How do I get to Cure KCNH1 Foundation?
Find your warmest path to Cure KCNH1 Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
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