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Cooley's Anemia Foundation at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Cooley's Anemia Foundation

To enhance the quality of patients' lives while taking the necessary steps toward finding a cure for this fatal blood disease.

$250k
Granted FY2025still arriving
5
Grants FY2025still arriving
5
States reached
$50k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2018 to 2025.

Health$957kEducation$748kScience & Tech$50k
02FY2025 · 5 grants

Where the money goes

Grants by size, and the largest recipients.

$50,000
Median grant
5
States reached
$7.6M
Total assets
Largest grants
RecipientAmount
CHILDRENS HOSPITAL OF PHILADELPHI$50,000
BRIGHAM AND WOMENS HOSPITAL$50,000
LINDSLEY F KIMBALL RESEARCH INSTITU$50,000
UNIVERSITY OF MD$50,000
REGENTS OF THE UNIVERSITY OF CA$50,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY18–25) land where the poverty rate runs at 15%, against an area that typically sits at 11%. 83% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%UNIVERSITY OF DELAWARE CASHIERS O: $33k → 10%BRIGHAM AND WOMENS HOSPITAL: $50k → 16%TRUSTEES OF UNIVERSITY OF PENNSYLVA: $8k → 22%CHILDREN'S HOSPITAL OAKLAND RESEARCH INSTITUTE: $33k → 10%UC REGENTS: $50k → 14%NEW YORK BLOOD CENTER: $50k → 17%THE REGENTS OF THE UNIVERSITY OF MI: $33k → 14%UNIVERSITY OF CONNECTICUT SPONSORE: $33k → 11%ST JUDE'S RESEARCH HOSPITAL: $43k → 17%DUKE UNIVERSITY ACCTS RECEIVABLE: $33k → 10%EMORY UNIVERSITY-1599 CLIFTON RD FL: $50k → 14%CLEVELAND STATE UNIVERSITY: $100k → 17%UNIVERSITY OF WASHINGTON DIVISION OF MEDICAL GENETICS: $16k → 9%UNIVERSITY OF ILLINOIS: $50k → 19%UNIVERSITY OF DELAWARE CASHIERS O: $33k → 10%NORTHEASTERN UNIVERSITY: $50k → 16%UC REGENTS: $50k → 14%LINDSLEY F KIMBALL RESEARCH INSTITU: $50k → 17%THE REGENTS OF THE UNIVERSITY OF MICHIGAN: $33k → 14%UNIVERSITY OF CONNECTICUT SPONSORE: $24k → 11%CLEVELAND STATE UNIVERSITY: $50k → 17%BOSTON MEDICAL CENTER CORP: $50k → 16%NEW YORK BLOOD CENTER: $50k → 17%THE REGENTS OF THE UNIVERSITY OF MICHIGAN: $16k → 14%CLEVELAND STATE UNIVERSITY: $50k → 17%MASSACHUSETTS GENERAL HOSPITAL: $50k → 16%ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $33k → 17%MASSACHUSETTS GENERAL HOSPITAL-RESE: $50k → 16%MASSACHUSETTS GENERAL HOSPITAL-RESE: $33k → 16%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

WA
IL
MI
NY
MA
OH
PA
CT
CA
MD
DE
TN
NC
GA
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

54%of every dollar goes to organizations it has funded before.
$918k · 8 repeat orgs$796k to everyone else

8 repeat relationships: 1 still active in FY2025, 7 since wound down; 4 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

8
15

Total granted

$918k
$596k

Median revenue growth · since first grant

+21%
+54%

Still filing today

38%
47%

New vs renewed · share of each year

In FY2025, 20% of grant dollars renewed an existing relationship; $200k went to new ones.

50%100%’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23’24’25
HealthEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • TC
    THE CHILDREN'S HOSPITAL OF PHILADELPHIA
    2× · 2020–2021 · $150k · revenue +59%
  • NY
    NEW YORK BLOOD CENTER INC
    2× · 2023–2024 · $100k · revenue +11%
  • UNIVERSITY OF DELAWARE
    2× · 2019–2020 · $65k · revenue +21%

Funded once

  • RU
    REGENTS UNIV OF CALIFORNIA
    one grant, 2022 · $50k
  • UO
    UNIVERSITY OF ILLINOIS
    one grant, 2024 · $50k
  • NORTHEASTERN UNIVERSITYgraduated
    one grant, 2021 · $50k · revenue +53%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
3
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
4
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
5
Mass General Brigham Incorporated & Affiliates Group Return

Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.

Health
6
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
7
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
8
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
9
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
10
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
11
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
12
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
How this is measured
The grantee most central to the portfolio’s shape is Northeastern University; the most unlike its peers is Children's Hospital & Research Center At Oakland. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

13 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 13 of the 29 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
13/13
Grantees still filing
13/13
Grew since first funded

Where the money sits, by cause and then by grantee

Cleveland State University: $200,000 · OtherCleveland State UniversityMASS GENERAL BRIGHAM INCORPORATED: $165,000 · OtherMASS GENERAL BRIGHAM INCORPORATEDREGENTS OF THE UNIVERSITY OF CA: $100,000 · OtherREGENTS OF THE UNIVERSITY OF CAREGENTS OF THE UNIVERSITY OF MICHIGAN: $81,250 · OtherREGENTS OF THE UNIVERSITY OF MICHIGANUNIVERSITY OF DELAWARE: $65,000 · OtherUNIVERSITY OF DELAWAREBOSTON CHILDREN'S HOSPITAL: $56,875 · OtherREGENTS UNIV OF CALIFORNIA: $50,000 · OtherUNIVERSITY OF ILLINOIS: $50,000 · OtherUNIVERSITY OF MD: $50,000 · OtherLINDSLEY F KIMBALL RESEARCH INSTITU: $50,000 · OtherUNIVERSITY OF CALIFORNIA SAN FRANCISCO: $50,000 · OtherMASS GENERAL BRIGHAM INCORPORATED: $50,000 · OtherUC REGENTS: $50,000 · OtherCHILDRENS HOSPITAL OF PHILADELPHI: $50,000 · Other+4 more: $105,625 · Other+4 moreTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $150,000 · HealthTHE CHILDREN'S HOSPITAL …NEW YORK BLOOD CENTER INC: $100,000 · HealthNEW YORK BLOOD CENTER IN…BOSTON MEDICAL CENTER CORPORATION: $50,000 · HealthBOSTON MEDICAL CENTER CO…ST JUDE CHILDREN'S RESEARCH HOSPITAL INC: $42,711 · HealthST JUDE CHILDREN'S RESEA…CHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND: $32,500 · HealthCHILDREN'S HOSPITAL & RE…NORTHEASTERN UNIVERSITY: $50,000 · EducationNORTHEASTERN …Emory University: $50,000 · EducationEmory Univers…Yale University: $32,500 · EducationYale Universi…ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $32,500 · EducationICAHN SCHOOL …DUKE UNIVERSITY: $32,500 · EducationDUKE UNIVERSI…TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $8,125 · Education
Other$1,173,750Health$375,211Education$205,625

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%grantee revenue →↑ funder's share of their budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $150,000 over 2y, 0.0% of budgetNEW YORK BLOOD CENTER INC: $100,000 over 2y, 0.0% of budgetUNIVERSITY OF DELAWARE: $65,000 over 2y, 0.0% of budgetNORTHEASTERN UNIVERSITY: $50,000 over 1y, 0.0% of budgetBOSTON MEDICAL CENTER CORPORATION: $50,000 over 2y, 0.0% of budgetEmory University: $50,000 over 1y, 0.0% of budgetST JUDE CHILDREN'S RESEARCH HOSPITAL INC: $42,711 over 1y, 0.0% of budgetCHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND: $32,500 over 2y, 0.0% of budgetYale University: $32,500 over 2y, 0.0% of budgetICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $32,500 over 2y, 0.0% of budgetDUKE UNIVERSITY: $32,500 over 1y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $8,125 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
  • Who funds NEW YORK BLOOD CENTER INC ↗
  • Who funds UNIVERSITY OF DELAWARE ↗
  • Who funds NORTHEASTERN UNIVERSITY ↗
  • Who funds BOSTON MEDICAL CENTER CORPORATION ↗
  • Who funds Emory University ↗
  • Who funds ST JUDE CHILDREN'S RESEARCH HOSPITAL INC ↗
  • Who funds CHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND ↗
  • Who funds Yale University ↗
  • Who funds ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ↗
  • Who funds DUKE UNIVERSITY ↗
  • Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗

How much its grantees rely on government

Each dot is one organization Cooley's Anemia Foundation funds: left to right is the share of its income from government, bottom to top the share from Cooley's Anemia Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%10%20%30%40%share of the org’s income from government →median 23%
  • University of Delaware: 30% of income from government
  • Boston Medical Center Corporation: 23% of income from government
  • Yale University: 12% of income from government
  • Northeastern University: 7% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–40%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 29 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Cooley's Anemia’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home