· Public charity
Choroideremia Research Foundation Inc
To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.
Where the money goes
Grants by size, and the largest recipients.
How this is measured
By grant size · FY2025
- $10k–50k2 grants · $56k
- $50k–250k2 grants · $159k
| Recipient | Amount |
|---|---|
| University of Wisconson | $100,000 |
| University of Pennsylvannia | $59,310 |
| University of Virginia | $30,636 |
| University of Michigan | $25,000 |
Does the money reach high-need areas?
Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.
Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 15%, against an area that typically sits at 14%. 45% of its dollars go to grantees based in above-average-need neighborhoods. Its grants spread fairly evenly across need levels.
How this is measured
Grants abroad, by region: $204k on the FY2025 return
Schedule F, as filed: 4 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: Choroideremia Rsrch
Stated purpose: Choroideremia Rsrch
Stated purpose: Choroideremia Rsrch
Stated purpose: Choroideremia Rsrch
How this is measured
Who it funds again
Organizations funded in more than one year, against those funded once.
7 repeat relationships: 0 still active in FY2025, 7 since wound down; 3 grantees were first funded in FY2025 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Still filing today
New vs renewed · share of each year
In FY2025, 0% of grant dollars renewed an existing relationship; $156k went to new ones.
How this is measured
Backed again, and grew
- IGIndividual grant recipient3× · 2022–2024 · $175k
- UOUniversity of Wisconsin2× · 2021–2022 · $121k
- BOBoard of Regents of University of Wisconsin2× · 2018–2020 · $115k
Funded once
- UOUniversity of Pennsylvania - Million Dollar Bike Rideone grant, 2019 · $110k
- UNUniversade Nova De Lisboaone grant, 2020 · $102k
- RORegents of the University of CA Los Angelesone grant, 2020 · $102k
How this is measured
Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.
2 grantees tracked through their own filings, 2017–2025.
Each grant beside the grantee’s revenue from every source, year by year.
How this is measured
Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 2 of the 19 grantees resolved in that span have returns of their own we could reconcile.
Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.
Where the money sits, by cause and then by grantee
Each grantee by its size and the funder’s share of it; top left is load-bearing
Grantee by grantee: a decade per organization, before and after funding
A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.
How much its grantees rely on government
Each dot is one organization Choroideremia Research Foundation Inc funds: left to right is the share of its income from government, bottom to top the share from Choroideremia Research Foundation Inc. Bigger dots raise more.
How this is measured
Play a game based on Choroideremia Research’s filings →