· Public charity
Castleman Disease Collaborative Network
To develop awareness of castleman's disease and to raise money to fund education and laboratory research to determine cause, treatment and ultimate cure.
Read this first · the figures below need context
93% of Castleman Disease Collaborative Network’s FY2024 grant dollars went to Trustees Of The University Of Pennsylvania, not to grantees.
Its money now reaches organizations through that sponsor, which does not report who recommended each grant. FY2024 names 1 organization directly, so a portfolio cannot be read from it.
Organizations named directly on the return
Amber years are those where most dollars went to a sponsor.
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Where the money goes
Grants by size, and the largest recipients.
By grant size · FY2024
- $10k–50k1 grant · $20k
- $250k+1 grant · $278k
| Recipient | Amount |
|---|---|
| UNIVERSITY OF PENNSYLVANIA | $278,000 |
| UPLIFTING ATHLETES INC | $20,000 |
Does the money reach high-need areas?
Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.
US giving: 88% of grant dollars ($1.7M). The need read here covers only this US portion; the 12% that went abroad ($244k) is mapped below.
Dollar for dollar, its grants (FY17–24) land where the poverty rate runs at 20%, against an area that typically sits at 13%. 94% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.
How this is measured
Beyond the US: 12% of all-years giving ($244k)
1 country, by the recipient’s country on the filing.
How this is measured
Where the work is directed
The same grants placed two ways: where each recipient sits, and where its stated purpose sends the money.
About 92% of Castleman Disease Collaborative Network’s grant dollars are earmarked for a different county than the recipient’s own address.
How this is measured
4 grantees tracked through their own filings, 2017–2025.
Each grant beside the grantee’s revenue from every source, year by year.
How this is measured
Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 4 of the 7 grantees resolved in that span have returns of their own we could reconcile.
Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.
Where the money sits, by cause and then by grantee
Each grantee by its size and the funder’s share of it; top left is load-bearing
Grantee by grantee: a decade per organization, before and after funding
A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.
How much its grantees rely on government
Each dot is one organization Castleman Disease Collaborative Network funds: left to right is the share of its income from government, bottom to top the share from Castleman Disease Collaborative Network. Bigger dots raise more.
How this is measured
Warm introductions · Powered by PlinthPlus
How do I get to Castleman Disease Collaborative Network?
Find your warmest path to Castleman Disease Collaborative Network through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
Play a game based on Castleman Disease Collaborative Network’s filings →