Ohio · Public charity
Batten Disease Support & Research Association
Our long-term vision is a world without batten disease. Our mission is to support batten families, fund and facilitate research and advocate for treatments and a cure.
- $136k
- Granted FY2024(still arriving)
- 8
- Grants FY2024
- 1
- Organizations funded FY2023
- 0%
- First-time grantees FY2023
- Median grant, FY2024
- $19,539
- Largest grant, FY2024
- $23,796
- Organizations funded a year
- 1 to 2
- FY2020 to FY2023
- States reached, FY2024
- 7
- Total assets, FY2024
- $966k
How open it is to new grantees
In FY2023, 0% of the organizations Batten Disease Support & Research Association funded were first-time grantees, receiving 0% of its grant dollars.
New vs renewed · share of each year
In FY2023, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2024still arriving | 8 | $136k | 75% |
| FY2023 | 1 | $52k | 0% |
| FY2021 | 1 | $10k | 100% |
| FY2020 | 2 | $50k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2020 to 2024.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2020 to FY2024, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| University of Rochester | $80,633 | 3 | 0% |
| University of North Carolina at Chapel Hill | $47,000 | 2 | n/a |
| Regents of the University of Colorado | $23,796 | 1 | n/a |
| Nationwide Childrens Hospital Inc | $23,411 | 1 | n/a |
| Children's Hospital of Orange County | $19,636 | 1 | 0% |
| Kennedy Krieger Institute Inc | $19,539 | 1 | n/a |
| Rush University Medical Center | $12,544 | 1 | 0% |
| New York University | $11,304 | 1 | 0% |
| Washington University | $10,000 | 1 | 0% |
Compare Batten Disease Support & Research Association with peer funders
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About Batten Disease Support & Research Association
- How much does Batten Disease Support & Research Association give?
- Batten Disease Support & Research Association reported 8 grants totaling $135,863 in its FY2024 IRS filing. It funded between 1 and 2 organizations a year over FY2020 to FY2023.
- What does Batten Disease Support & Research Association fund?
- By grant dollars over FY2020 to FY2024, its largest causes are Health (44%), Education (40%), Science & Tech (16%).
- Who are Batten Disease Support & Research Association's largest grantees?
- By total granted over FY2020 to FY2024: University of Rochester ($81k), University of North Carolina at Chapel Hill ($47k), Regents of the University of Colorado ($24k).
- Does Batten Disease Support & Research Association fund new organizations?
- In FY2023, 0% of the organizations it funded were first-time grantees.
- Where is Batten Disease Support & Research Association based?
- Batten Disease Support & Research Association is based in OH.
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