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Texas · Public charity

American Syringomyelia Alliance Project Inc

To provide support for persons affected by Syringomyelia and Chiari Malformation through support groups, information dissemination, conducting an annual medical conference, and distributing educational materials. Also to raise funds to provide grants for medical research.

$24k
Granted FY2024(still arriving)
2
Grants FY2024
1
Organizations funded FY2023
100%
First-time grantees FY2023
Read the full brief
Median grant, FY2024
$13,246
Largest grant, FY2024
$13,246
Organizations funded a year
1 to 4
FY2017 to FY2023
States reached, FY2024
2
Total assets, FY2024
$4.4M

How open it is to new grantees

In FY2023, 100% of the organizations American Syringomyelia Alliance Project Inc funded were first-time grantees, receiving 100% of its grant dollars.

New vs renewed · share of each year

In FY2023, 0% of grant dollars renewed an existing relationship; $33k went to new ones.

50%100%’18’19’21’22’23
RenewedFirst-time
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2024still arriving2$24k50%
FY20231$33k100%
FY20222$46k100%
FY20213$82k100%
FY20191$16k100%
FY20181$19k0%
FY20174$80kn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$427kScience & Tech$33kEducation$29k

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

ID
WI
OH
NJ
CA
UT
MO
VA
GA

Top grantees

Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
Global Neurosciences Institute$39,3401n/a
University of Wisconsin$33,3331n/a
University of Wisconsin Madison$33,3331n/a
Georgia Institute of Technology$33,3331n/a
Cleveland State University$33,2641n/a
Washington University$29,00020%
University of Utah$19,9122n/a
Regents of the University of Idaho$15,6951n/a
The University of Akron$11,1671n/a

Plus 3 recipients with no EIN on record ($53k), not named here.

Compare American Syringomyelia Alliance Project Inc with peer funders

Warm introductions · Powered by PlinthPlus

How do I get to American Syringomyelia Alliance Project Inc?

Find your warmest path to American Syringomyelia Alliance Project Inc through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

About American Syringomyelia Alliance Project Inc

How much does American Syringomyelia Alliance Project Inc give?
American Syringomyelia Alliance Project Inc reported 2 grants totaling $24,413 in its FY2024 IRS filing. It funded between 1 and 4 organizations a year over FY2017 to FY2023.
What does American Syringomyelia Alliance Project Inc fund?
By grant dollars over FY2017 to FY2024, its largest causes are Health (87%), Science & Tech (7%), Education (6%).
Who are American Syringomyelia Alliance Project Inc's largest grantees?
By total granted over FY2017 to FY2024: Global Neurosciences Institute ($39k), University of Wisconsin ($33k), University of Wisconsin Madison ($33k).
Does American Syringomyelia Alliance Project Inc fund new organizations?
In FY2023, 100% of the organizations it funded were first-time grantees.
Where is American Syringomyelia Alliance Project Inc based?
American Syringomyelia Alliance Project Inc is based in TX.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 13 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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